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Diagnosed In Dec With Plasmacytoma. Took Out My T4 Vertabrae, Caused SCI And Paralysis Waist Down.

A MyMyelomaTeam Member asked a question đź’­
Palos Verdes, CA

My 3 questions are these. How are they going to demonstrate to me that they killed the tumor? Why have I not been told of a maintenance plan to prevent this turning to MM. (most Plasmacytoma will). And third and last question what is a good surveillance plan that I should expect to have?

January 26, 2023
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A MyMyelomaTeam Member

Hi Terrell2 - Sounds like a good plan. The PET/CT is probably the best way to track your progress. Any MM will light-up where ever there's cancer activity. Read the reports of the radiologist that reviews the scan and get a Disk and get comfortable at looking at the PET/CT yourself. You can find plenty of info online.

The other major item is to track are your Labs. You want to know if there's a MSpike, high levels of Serum Protein, Serum Calcium, B2M, your Ig levels of IgG, IgA, and IgM and your Ratio. There should have been a FISH test of the biopsy that identifies your cancer type and any high risk factors.

Plenty of Case Study Reports and related info at my Story - @A MyMyelomaTeam Member

All the Best

January 26, 2023
A MyMyelomaTeam Member

I'm sorry to hear about your diagnosis and the challenges you're facing. Here is some relevant information based on your condition:

- Plasmacytoma Treatment: Radiation therapy is the standard treatment for solitary plasmacytoma. It is generally effective because only a single tumor is involved. Surgery may also be Show Full Answer

I'm sorry to hear about your diagnosis and the challenges you're facing. Here is some relevant information based on your condition:

- Plasmacytoma Treatment: Radiation therapy is the standard treatment for solitary plasmacytoma. It is generally effective because only a single tumor is involved. Surgery may also be recommended in some cases.
- Radiation Therapy: This can help prevent paralysis if a plasmacytoma presses on a nerve and can reduce cancer-associated bone pain. However, nerve damage is a less common side effect.
- Prognosis: The five-year survival rate for solitary plasmacytoma is as high as 70%, although it can vary depending on the location of the tumor and the type of treatment received.

For more detailed information, please consult with your healthcare provider.

July 19
A MyMyelomaTeam Member

Larry offered great advice. I went through a similar situation with a singular plasmacytoma in my L3 vertebrae. Surgery to remove most of the diseased tissue and radiation to knock it out. Follow up several months later with a PET/CT scan showed no tumor. You should be working with your oncologist for monthly or quarterly blood work, which will pick if the plasmacytoma has moved into a MGUS or smothering MM stage. If your blood work (light chains, M spike, Igg) continues to be in normal range, no worries. If these numbers are above normal, it’s a waiting period to see what they’re going to do. These results can either 1) stabilized over time, 2) bounce around for a while or as in my case, 3) continuous to climb and then accelerate. Each stage of MM has different limits so you know which stage you’re in. If your blood work is normal, then you’re in a watchful waiting stage. Also like you, we knew where this cancer was heading, so why not treat it early? However, the medical community doesn’t like to treat patients who are feeling good, and healthy even though MM is a progressive disease. So speak with your Dr. and see what he/she recommends for monitoring your blood test going forward and (like me) consider yourself lucky as you picked up on your cancer early. Most people aren’t aware they have MM until later more harmful stages. Hope this helps.

Jamie

February 20, 2023
A MyMyelomaTeam Member

I should add the treatment plan is radiation. No chemo. PET check in 3 months after radiation ends.
I am finishing acute rehab this week, after 2 weeks I can at least mimic walking with walker support. Going to keep at the rehab.

January 26, 2023 (edited)

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