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Who Has Had Plasmacytomas ?

A MyMyelomaTeam Member asked a question 💭
Quincy, IL
12 hours ago
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A MyMyelomaTeam Member

@A MyMyelomaTeam Member
That is amazing!
I may have a single plasmacytoma upper rib cage
Not painful, mobile & size od a walnut.
Thank you do much
I'll read your story again

8 hours ago
A MyMyelomaTeam Member

My Bone Lesion Tumor at the top of my Left Arm Bone, that I treated in Sept of 2023, was a Single Plasmacytomas. As the AI response starts out saying they're rare, around 5%. Mine was even rarer since I had full blown Marrow MM in 2021, had Treatment (no Stem cell collection and no ASCT) and My Marrow was in complete remission shortly thereafter (stopped all MM Meds by June 2022).

The extra rare part was that my Marrow stayed uninvolved during my Bone Lesion Tumor. My local Onc said any time a person's had Marrow MM, any Active Lesions will cause the Marrow to become involved again. My Consulting John Hopkins Onc said they've seen rare cases like mine where there's only a new Single Plasmacytomas without any new Marrow Activity.

At my Story @A MyMyelomaTeam Member, I've thoroughly Documented this entire event with Imaging (before, during, and after), detailed Labs and a detail account of everything I went through.

The AI said treatment typically includes Radiation. I did not get Radiation. Very Wisely my Interventional Radiologist told me Radiation should be my Last Resort, saying Radiation turns Bone to Stone and that my MM Meds of Revlimid and Dex are Systemic and will kill off the Cancer throughout my Body. Had I received Radiation, my Bone Lesion would have never been able to have that Hole repaired - as Stone, it would have remained a Hole.

My local Onc retold my Story to a young visiting Onc, as this Bone Repair and the quick rising and return to normal, of my Alk Phos, is like what happens to a child when they break a Bone. The body has the required minerals and vitamins and resiliency to quickly repair the bone, every bit as good as new.

To their amazement, my Full Weekly Labs documented my Recovery was instant. The Bone Lesion Tumor Cancer was killed-off in a week. My Bone Repaired itself in under 3 weeks (PET/CT in 12 days already showed the Repaired Bone and the Full Body Skeletal Survey at 19 days confirmed it).

I've Documented how this was possible through my Supplements and Treatment MM Meds, without Radiation or Surgery. I took certain Pre and Probiotics that quickly created Butyrate in my colon to Reset IL-17 to allow normal Osteoblasts and enough Minerals and Vitamins to provide the Construction materials necessary for Bone Building. My Alk Phos (bone activity indicator) rose quickly during that time and returned to Normal afterwards. This was all supported by my Plant Based Diet and the Revlimid and Dex to do the killing of the Tumor.

8 hours ago
A MyMyelomaTeam Member

Plasmacytomas are rare, affecting fewer than 5% of people with plasma cell disorders. They are more common in older adults (ages 55-65) and occur more frequently in men than women. Black Americans have about a 30% higher rate of diagnosis compared to white Americans. If you'd like to read more, visit url: https://www.mymyel Show Full Answer

Plasmacytomas are rare, affecting fewer than 5% of people with plasma cell disorders. They are more common in older adults (ages 55-65) and occur more frequently in men than women. Black Americans have about a 30% higher rate of diagnosis compared to white Americans. If you'd like to read more, visit url: https://www.mymyelomateam.com/resources/plasmac....

12 hours ago

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