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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Swollen Face And Eyes From Daratumbin (spelling)

A MyMyelomaTeam Member asked a question 💭
Philadelphia, PA

Has anyone ever had severe eye or face swelling from daratumbin or dexacon and velcade.
Th dr just added daratumin and his eyes have swollen bags which look like they are filled up n can burst if u stick a pin I. Each and his face n lips are swollen. He had the treatment Tuesday and it happened on Friday. Thx in advance. 🙏

September 16, 2022
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A MyMyelomaTeam Member

Linda, I hope you've reported this to the doctor...it could be an allergic reaction that needs attending to. Ron gets slightly swollen jowls from Darzalex, but it doesn't last more than a day or two.

September 16, 2022
A MyMyelomaTeam Member

I got a swollen eyes from velcade, very bad swollen, I can't open my eyes from it , so doctor stop velcade and switch me to kyprolis , and he referred me to an eye doctor .

September 16, 2022
A MyMyelomaTeam Member

He is today swollen went down. Lots of ice. Thx for checking in 😀

September 17, 2022
A MyMyelomaTeam Member

The first time I had Darzalex they ran it over 8 hours. I had my own nurse

November 1
A MyMyelomaTeam Member

Had anaphylaxis and face swelling from Darzalex in IV form. No more for me

October 31

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