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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Bad Swelling In Legs And Feet

A MyMyelomaTeam Member asked a question 💭
Marlton, NJ

I weaned off Dexamethasone 8 weeks ago. Shortly after that I developed bad swelling from mid-thigh down to my toes. ( I only ever had one swollen foot before)
Also about the same time I went down to 10mg of Lenalidomide from 25mg. The edema has not improved and I've been recommended to seek out a vascular MD. Has anyone else developed this really bad edema? My calves are hard as a rock, ankles swelled to twice their size and very swollen feet (along with long term peripheral neuropathy).… read more

July 15, 2023 (edited)
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A MyMyelomaTeam Member

If you have not already had your heart and kidneys checked recently, those possible sources of edema in the legs should be investigated. You may want to wear thigh high pressure stockings to help avoid damage also, but do so with guidance from your doctor as to the correct strength of the stockings.

July 17, 2023 (edited)
A MyMyelomaTeam Member

Hi Mark. I did have lower leg, ankle and feet swelling the first year I started treatment. But nothing as bad as you are describing. I hope you are seeing the vascular doctor soon.

July 16, 2023
A MyMyelomaTeam Member

Swelling in the legs and feet can be a symptom of multiple myeloma. Here are some potential causes and tips for relief:

Potential Causes
- Peripheral Neuropathy: Nerve damage can lead to swelling.
- Kidney Disease: Edema (swelling) in the legs and feet can be a sign of kidney issues.
- Deep Vein Thrombosis (DVT): Blood Show Full Answer

Swelling in the legs and feet can be a symptom of multiple myeloma. Here are some potential causes and tips for relief:

Potential Causes:
- Peripheral Neuropathy: Nerve damage can lead to swelling.
- Kidney Disease: Edema (swelling) in the legs and feet can be a sign of kidney issues.
- Deep Vein Thrombosis (DVT): Blood clots in the legs can cause swelling and should be treated promptly.

Tips for Relief:
1. Stay Hydrated: Drink plenty of water, but consult your doctor about safe water intake.
2. Elevate Your Legs: Elevating your legs can help reduce swelling.
3. Compression Stockings: These can help manage swelling.
4. Exercise: Gentle exercises can improve circulation.
5. Consult Your Doctor: Always discuss symptoms and treatment options with your healthcare provider.

If you notice severe or sudden swelling, contact your doctor immediately.

July 9
A MyMyelomaTeam Member

Thanks Diana!

July 17, 2023
A MyMyelomaTeam Member

Thanks Donna! Hoping to find the right one!

July 16, 2023

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