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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
3457 questions
If Anyone Had CAR-T Please 🙏 Let Me Know How Long You Had To Be In And Out Of The Hospital And How Long Did It Take For You To Feel OK
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

After receiving a CAR-T cell infusion for multiple myeloma, individuals often need to stay in the hospital for several weeks. This period allows doctors to monitor the effectiveness of the treatment… read more

posted 4 hours ago
Anyone Have Had The Car-T Treatment Yet? I Am Going To Have It In July.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

It's great that you're reaching out to connect with others about CAR-T cell therapy. While I can't provide direct experiences from individuals, I can share that many people have undergone this… read more

posted 14 hours ago
Experience With Stem Cell Transplant On Newly Diagnosed Patients?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

The context provided does not specifically mention experiences with stem cell transplants in newly diagnosed myeloma patients. However, it does discuss general aspects of stem cell transplants for… read more

posted 15 hours ago
How Did You Feel After Harvesting Of Stem Cells? I Have Had Issues With Aches And Pain, Intestinal Issues And Fatigue.
A MyMyelomaTeam Member asked a question 💭

I have what is considered high risk myeloma. I didn’t have enough stem cells from the first harvesting attempt of four days so was sent home for two weeks of “rest”.

A MyMyelomaTeam Member

Glad to hear it just isn’t me!! You came thru the transplant ok?

posted 12 hours ago
My SO Was A Swimmer Before His Diagnosis And Treatment. He Is Loosing Muscle Mass. What Are Some Things You All Do To Prevent This Loss.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I’m glad to hear you’re doing good. Keep up the exercise. We have to keep moving. 🚶‍♀️

posted 8 hours ago
To The MMTEAM
A MyMyelomaTeam Member asked a question 💭

Sorry to the MMTEAM because myself now jobless so l always write to this page and whenever l wrote that l feel better n it make my day and happy, l hope that MM team understand 🙏😂

A MyMyelomaTeam Member
posted 22 hours ago
I Have Just Completed 7 Sessions (21) Infusion Of Krypolis 40 & 30 Dex.& 2.5 Of Pomalyst. Dr Wants To Put Me On Darzalex Faspro Injections.
A MyMyelomaTeam Member asked a question 💭

Injections r once a week for 8 weeks along with Dex. Anyone have these injections??

A MyMyelomaTeam Member

Tuscany, cute name btw. The Darzalex is weekly for 8 weeks then biweekly. As you can see it takes awhile to get to monthly. I was scared at the beginning. I started out getting the IV version. The… read more

posted 13 hours ago
About Our MM Medications And Other Prescriptions/meds, Including Supplements?
A MyMyelomaTeam Member asked a question 💭

Should we space out our medications or is it alright to take one right after another, if instructions do not specify how something is to be ingested. For example; I know someone who takes several supplements all at once. His medications, many times the same way. I know thyroid medication has to be taken on an empty stomach, so that means first pill in the morning.....for me. I have to wait at least 30 min. before I eat or take another pill. Some pills say to take with food, some don't. I… read more

A MyMyelomaTeam Member

Take your B vitamins in the morning. They give you energy.

posted 1 day ago
Have Not Looked It Up Yet, Bt Has Anyone Had/heard Of ELRA( Renap?). It Is A Byte. Md Proposng Dependng On Bone Biopsy Result.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Hi Myrho,
I posted the two articles for your information from Google searches using your question. Hope this helps.

posted 1 day ago
MGUS And Progression To Myeloma
A MyMyelomaTeam Member asked a question 💭

How long does it take for MGUS to progress to Multiple Myeloma

A MyMyelomaTeam Member

After watching some of Dr Brandy’s talks online, I was amazed at how smart he is. He has MM too and is doing quite well.

posted 2 days ago
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