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Questions & Answers

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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
3546 questions
Has Anyone Found Anything That Helps With Lack Of Energy?
A MyMyelomaTeam Member asked a question 💭
posted 2 days ago
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A MyMyelomaTeam Member

I'm trying to follow Dr Brandy's advice from his book "Beat Back Cancer Naturally". The supplements and change of diet are giving me more energy. I vacuumed the whole house today, walked both dogs… read more

posted 2 days ago
I’m Having Trouble Adding New Members To My Team. They Have Added Me But What Do I Do To Add Them Back To My Team? Thank You So Much.
A MyMyelomaTeam Member asked a question 💭
posted 3 days ago
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A MyMyelomaTeam Member

Until you asked, I didn’t know. Thanks for helping us all figure it out. I hope you are having a great day. 🌈🌸🌼
Paula🌹

posted 1 day ago
Solution For Numbness And Tingling After Finishing The 12 Cycle.
A MyMyelomaTeam Member asked a question 💭
posted 5 days ago
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A MyMyelomaTeam Member

Patrick
I wish doctors would promote Alpha Lipoic Acid and B Complex Vitamins before and during treatment. Even Nutritional Yeast would help. You can try taking them now to see if they help. They… read more

posted 5 days ago
I'm On Maintenance Therapy With Ninlaro And Dexamethazone. Weight Gain Is An Issue. How Do I Keep My Weight Down To A Healthy Weight?
A MyMyelomaTeam Member asked a question 💭
posted 5 days ago
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A MyMyelomaTeam Member

I gain weight too. I started eating healthy and control carbohydrates intake. Start walking four days a week for at least an hour. I feel lighter.

posted 10 hours ago
What Medications Do You Use For Your MMyloma?
A MyMyelomaTeam Member asked a question 💭

I was diagnosed several years ago and I take 2 mg Pomalyst

posted 6 days ago
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A MyMyelomaTeam Member

I am taking Pomolyst and Daratumab and steroids Dexamethasone

posted 3 days ago
For All Who Are In Remission, Do You Do A Monthly Maintenance Treatment Schedule.
A MyMyelomaTeam Member asked a question 💭
posted May 11
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A MyMyelomaTeam Member

Hello Greg
I’m a very good partial remission. Diagnosed 3 years ago. Initially my treatment was Dex, DarFaspro, and Revlimid. I am MRD positive. I’m currently on Revlimid 10mg 21/7 and monthly… read more

posted 4 days ago
Has Anyone Gone Through The MAIA Trials III For MM?
A MyMyelomaTeam Member asked a question 💭
posted May 11
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My Wife Started Revlimid But The Money Will Run Out Before She Finishes All Of The Cycles. What Other Sources For Funding Are Available? Tx
A MyMyelomaTeam Member asked a question 💭
posted May 11
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A MyMyelomaTeam Member

Ken, I think you’ve gotten the best information out there. Wishing you and your wife the best!

posted 3 days ago
I Have Severe Back Pain On My Right Side - Pain Radiates On The Anterior Right Thigh- I Cannot Sleep Or Sit - I Have Been Put On Prednisone
A MyMyelomaTeam Member asked a question 💭

I’m on prednisone now with acyclovir / gabapentin/ Aspirin ER/ revlimid
I have freezing of my hands / when I turn I get frozen - please an idea of what it could be would be a great help

posted May 11
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A MyMyelomaTeam Member

Try to stay ahead of the pain ...my siblings who are vets at this kind of pain urged me to take oxy every three hours and intervening tylenol every 5 hours..to calm down those nerves... it helped as… read more

posted 6 days ago (edited)
How Does Multiple Myeloma Affect My Diabetes?
A MyMyelomaTeam Member asked a question 💭

High blood sugar
Insulin resistance

posted May 11
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A MyMyelomaTeam Member

Some people on dexamethasone have had a rise in their sugar levels. Hopefully others will share their experiences.

posted May 11