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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Myeloma Symptoms Keep You Up At Night?

By A MyMyelomaTeam Member 124 answers

Which Myeloma Symptom Surprised You The Most?

By A MyMyelomaTeam Member 150 answers

What Are Your Top Tips For Dealing With Myeloma In The Heat?

By A MyMyelomaTeam Member 70 answers

How Does A Person Decide They No Longer Require "Maintenance Drugs" Such As Revlimid?

By A MyMyelomaTeam Member 100 answers
4728 questions

Where Is @A MyMyelomaTeam Member? We All Miss You And Your Pups, Helpful Information And Videos.

A MyMyelomaTeam Member asked a question 💭
Warrenton, VA

Please let us know you are okay 🙏❤️

A MyMyelomaTeam Member

Hmmm I found nothing...

September 18

Is It True That The Sugar Is Bad For MM ??

A MyMyelomaTeam Member asked a question 💭
Oakland, NJ
A MyMyelomaTeam Member

Try Date Syrup it's really good and plant based.

September 28

I Am On The Treatment Of Chemo Shots For 16 Weeks With Medication. Anyone Have Experience With This?

A MyMyelomaTeam Member asked a question 💭
Gladstone, MO
A MyMyelomaTeam Member

How many milligrams

September 16

How Long Till You Can Travel Overseas, I Mean 22 Hours Flight Plus Another 5 Hours Transportation???

A MyMyelomaTeam Member asked a question 💭
Oakland, NJ
A MyMyelomaTeam Member

You will have to get a clearance from your doctor for sure🥰

September 15

Fish Results: Indication For Study, Cytogenetics Monoclonal Gammopathy Of Unknown Significance FINAL

A MyMyelomaTeam Member asked a question 💭
Ravenden, AR

Has anyone had a deletion like mine? I know they are currently doing study’s on it I’ve been ready up on it but I didn’t know if anyone else’s first bone marrow started this way ? And how fast it progressed
FINAL DIAGNOSIS
46,XX[18]
46,XX,t(1;19)(p10;q10)[1]
46,XX,del(12)(p11.2)[1]


Normal female chromosome analysis. The presence of an abnormal karyotype in single cell cannot be regarded as a "true" clone, but may indicate the presence of an abnormal cell line suggesting clinical relevance.… read more

A MyMyelomaTeam Member

Thanks Paula I’ll be having another biopsy and FISH ran in Jan so I’m already anxious to see if anything has changed

September 15

Hi! My Name Is Monica! I Had A Stem Cell Transplant A Couple Of Weeks Ago, Does Anyone Knows About A Multivitamin I Can Take? Thank You!

A MyMyelomaTeam Member asked a question 💭
Redding, CA
A MyMyelomaTeam Member

I have just had a Stem Cell Transplant and Dana Farber have me on a daily multi vitamin, along with other vitamins (magnesium, Vit D2, calcium). I presume the Doctors prescribe what is relevant to… read more

September 19

Any Tips For A Caregiver During The Autologous Stem Cell Transplant Process? My Sister Is Going To Mayo For It In About A Month.

A MyMyelomaTeam Member asked a question 💭
Minneapolis, MN

My sister has multiple myeloma & has had fractures of her L1 & L2 vertebrae & has had 2 kyphoplasties. She has a lot of back pain & is on serious pain meds for it. I'm going to be her caretaker at the Mayo transplant house during her stem cell transplant procedure. I'd like to know what to expect & if people have good ideas to make the process better for her. Things to tempt her appetite & keep up her nutrition. Skin care tips to counteract aging from the chemo. Things to make her feel better… read more

A MyMyelomaTeam Member

Very important for your sister to have ice, popsicles etc. My husband started ice an hour before mephelan and for six hours after. He had no mouth sores at all. His whiskers made a perfect circle… read more

September 20

What Is T-cell Treatment

A MyMyelomaTeam Member asked a question 💭
Los Angeles, CA
A MyMyelomaTeam Member

T-cell treatment, specifically CAR T-cell therapy, is a type of immunotherapy used to treat multiple myeloma. Here are the key points:

- Process
- T-cells, a type of immune cell, are collected… read more

September 14

I Have To Take My Myeloma Treatment For The Rest Of My Life I’m On Dex Cyclophosphamide And Daratumamab How Long Can This Be Effective

A MyMyelomaTeam Member asked a question 💭
Prince George, BC
A MyMyelomaTeam Member

I only had cyclophosphamide one time, before my transplant. I have been on Darzalex and Pomalyst for over 6 years.

September 16

I Have Had SMM For 5 Months. What Are The High Risk Genetics That Can Cause Your SMM To Escalate To MM? Or Make It More Likely For You To

A MyMyelomaTeam Member asked a question 💭
Orange County, CA

develop Mm?

A MyMyelomaTeam Member

Sign up to the Facebook Forum - Beating Multiple Myeloma with a Naturopathic Approach.

They definitely agree with taking MM Meds, as and when needed, but they also Focus on a Plant Based Diet and… read more

September 14
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