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What Maintenance Plan, If Any Were You Put On Following Stem Cell Transplant?

A MyMyelomaTeam Member asked a question 💭
Sun City West, AZ

My results from bone biopsy I get on 10/24. My DR already said we will put u on a maintenance plan depending on results. Your experience???

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A MyMyelomaTeam Member

Yes I was told that revlimid can cause neuropathy side effects although it is rare. I don't know about memory loss.

Hi. Recently Taken Off Xgeva Because Of Terrible Tooth And Jaw Pain, Though I'd Taken It For 5 Months Since Diagnosis. Has Anyone Had This?

A MyMyelomaTeam Member asked a question 💭

I'm 80 and was diagnosed five months ago with late stage Myeloma. I'm in good health otherwise and frankly feel really quite well these past few days. I am on the RVd protocol but have been taken off Rivlimid as well as Xgeva having suffered several severe side effects sending to the hospital twice - tremors, blood clots, urinary bleeding, 24 pounds of fluid retention, 3 DVT's, 3 pulmonary embolisms and a severe body rash so bad they took photos of it in the hospital. I have thankfully recovered… read more

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A MyMyelomaTeam Member

Fluid retention is generally heart related. You need to see a GOOD cardiologist to be put on diuretics. At 24 lbs of fluid in your abdomen you need it removed asap to prevent heart failure