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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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I M MM Patient For Last 2 Year And Under Maintenance. My Skin Has Become Dark Specially Feet Fire Head Elbows Etc. Is This The Side Effect

A MyMyelomaTeam Member asked a question 💭
Mumbai India
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A MyMyelomaTeam Member

Yes, skin darkening can be a side effect of certain treatments for multiple myeloma. According to my knowledge base, common side effects of Doxil (a treatment for myeloma) include darkening of the… read more

So Four Years In And It Seems I Now Need To Change My Drugs Away From Revlimid. What Are My Options?

A MyMyelomaTeam Member asked a question 💭
Las Cruces, NM
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A MyMyelomaTeam Member

If you have become refractory to Revlimid, then the other IMIDS will probably not work. Depending upon your cytogenetics, you could use Venetoclax (t11,14) or go with a CAR-T. Make sure you are… read more

What Defines Remission? Does It Require A Complete Absence Of M Proteins?

A MyMyelomaTeam Member asked a question 💭
Bloomington, IN

I was diagnosed with MM in September 2022 after a four year old knee replacement became infected. I started a Velcade/Dexamethasome/Revlimid regimen immediately. Had a stem cell transplant in February 2023. Restarted treatment with the addition of Daratumamab in April 2023.

My M Proteins have continued to go down, but I don't know if they have to become undetectable before I'm considered in remission.

Thanks for your wisdom.

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A MyMyelomaTeam Member

Me too! The knee has been opened three times. That's quite enough.

Is A Stem Cell Transplant Inevitable?

A MyMyelomaTeam Member asked a question 💭
Gainesville, GA

I am newly diagnosed I have stage 1 MM. doctor is putting me a few meds which is saying is a low form of chemo. and Suggested I go get stem cells ready in case I may need a SCT. Is it inevitable that as this progresses I will definitely have to do the stem cell transplant?

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A MyMyelomaTeam Member

I wish your husband great success in car t,,,I'm finished now and so far my tests have great results 0 m spike,and petscan shows no uptakes....I'm convinced this is the cure,and goodbye to my… read more