Connect with others who understand.

Sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Guidelines Crisis Accessibility
Resources
Emotional Well-Being Living with Myeloma Myeloma Condition Information Myeloma Symptoms Myeloma Treatments All Resources
About MyMyelomaTeam
What is This Site Terms of Use Privacy policy
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Interested To Hear From Anyone Who Had SCT,is In Remission, And Not Doing Maintenance Revlimid? TIA

A MyMyelomaTeam Member asked a question 💭
Bridgeport, MI
January 4
•
View reactions
A MyMyelomaTeam Member

Hi Greg, I had sct January 2024 at U of M. Was put on Revlimid 10 mg 3 months after and numbers remained stable but white blood count too low. Dr reduced be to 5 mg and wbc better but now light chains going up. I have appt with U of M January 15th to discuss what is going on. Worried things going in wrong directions. I tolerate the Revlimid except for wbc and stomach issues. Just don’t want MM to take charge again. Hope all is well with you

January 4
A MyMyelomaTeam Member

Greg,
Check out @A MyMyelomaTeam Member home page for his story, and how he feels about treatment .Also, Dr Brandy has MM and he wrote a book “Beat Back Cancer Naturally.” Check it out.
Paula🌹

January 4
A MyMyelomaTeam Member

Maintenance therapy, like Revlimid, is often recommended after a stem cell transplant (SCT) to prolong remission and improve outcomes. However, not everyone opts for or tolerates maintenance therapy. If you're not on Revlimid, it's essential to closely monitor your condition with your healthcare team, as myeloma often Show Full Answer

Maintenance therapy, like Revlimid, is often recommended after a stem cell transplant (SCT) to prolong remission and improve outcomes. However, not everyone opts for or tolerates maintenance therapy. If you're not on Revlimid, it's essential to closely monitor your condition with your healthcare team, as myeloma often relapses. Discuss alternative strategies or clinical trials that might suit your situation.

January 4

Related content

View All

Hello My Beautiful MM Family, I Had A SCT, In October, I’m Feeling Great, What Are The Chances Of Relapsing After A Sct? Thank You

A MyMyelomaTeam Member asked a question 💭
Prospect Park, PA
January 8, 2024

Please Speak Up, What And Who Is Or Has The Longest Remission/ Survival From MM?

A MyMyelomaTeam Member asked a question 💭
Newfoundland, Canada
May 24, 2023

Maintenance Therapy After Stem Cell Transplant

A MyMyelomaTeam Member asked a question 💭
Oceanside, CA
March 20, 2021
Member Spotlight: No Expiration Date
Understanding the Stages of Multiple Myeloma: Q&A With Dr. Mohan
My Perspective: Living Well With Cancer
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in