That is the funny part! She is 39 and a RN so she really knows these things. Her children, who are 21, 17 and 14 are also having trouble with that as well as my cancer but they lived with me at times and used to spend every weekend with me. Needless to say, we are very close. They have moved out of state so we don’t get to spend time together as we used to. The 21 y.o. Came to spend the weekend with me this past weekend but she is in college here in Ohio so…. They will adjust with time.

Reneclose I agree. The hair loss was a small thing but I understand how it’s hard on kids. How old is your daughter? My kids were older but I’m sure it was tough for them to see me so weak when I was in the hospital. I’m glad your daughter told you it bothers her. It’s good that they feel comfortable enough to talk about it

Hi Rena,
Depending on what type of MM you have and how well you are responding, SCT is not always the first choice. Check out @A MyMyelomaTeam Member story. He is MM free with no SCT. One of my first questions when I first came on this site, was to ask about losing my hair to treatment. I think cooling caps can prevent it, so look into it.
Paula🌹

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A MyMyelo...

Thank u so much! I am waiting on my appt with my oncologist in a few weeks and for the transplant team to contact me and the questions and anxiety keeps growing!! I was thinking of shaving my head but one of my daughters is very opposed to it and is not handling that part well at all. I am a-ok with that. It seems minor compared to all else. Thanks so much!!

Melpahlan is the chemo they use. Much like mm everyone’s side effects and how they deal with the SCT is different. I had diarrhea and nausea and fatigue but I think it was all worth it. It put me in complete remission. I’m a little over a year out from my SCT. As far as I know everyone loses their hair. I guess if available you could ask about the cold cap. I let the nurse shave my head but I was never completely bald I had stuble. It took a few months to start to grow again.