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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Are You Doing With High Risk Myeloma? How Long Do You Stay In Remission?

A MyMyelomaTeam Member asked a question 💭
Florham Park, NJ
November 3
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A MyMyelomaTeam Member

I don't think I have ever been in "remission" but I do think that my Onc team has achieved stabilization of the MM. Treatment is changed every time blood work "flares" until restabilized. This will have lasted four years in January.

November 3
A MyMyelomaTeam Member

I hit the triple high risk, had SCT in May 2024, I get completed remission also and doing well, I am pray for the remission last long.

November 4
A MyMyelomaTeam Member

I have never been a good transplant target due to many other issues but also have no M spike. I hope your deep remission becomes a "cure"! Best wishes!

November 4
A MyMyelomaTeam Member

Oh wow so you’re hanging in there. God bless you!! I just had my second transplant the end of August and I just found out I’m in deep remission. No m spike. I’m scared it’s going to come back quickly since I’m high risk.

November 3
A MyMyelomaTeam Member

For individuals with high-risk myeloma, the duration of remission can vary significantly based on several factors, including the specific gene changes in the myeloma cells. These high-risk cytogenetic features can impact how well the myeloma responds to treatment. Studies have found that people with these high-risk features Show Full Answer

For individuals with high-risk myeloma, the duration of remission can vary significantly based on several factors, including the specific gene changes in the myeloma cells. These high-risk cytogenetic features can impact how well the myeloma responds to treatment. Studies have found that people with these high-risk features tend to have shorter median overall survival because certain mutations make the cancer more resistant to treatment. It's essential to discuss your specific situation with your oncologist, who can provide a more personalized outlook based on your unique circumstances.

November 3

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