I have to be honest, I really don't care about survival rates. Based on the AI response, I should be dead by now. But I'm in a state right now where my MM is under control and its not killing me. My issue is dealing with the side effects of treatment, which requires effort and I'm winning that battle.
I have a great oncologist and we both agree that its a game of staying one step ahead of the disease. After 2 1/2 years I am on my fourth line of treatment and its working. I also expect it to fail one day and I'll move on to the next line of treatment. And thats how we are staying one step ahead of the disease by being grateful there are 2-3 new lines of treatment already available to the general public that are completely unique and new treatment types. So i can move on to them next if necessary. It took me awhile to accept that MM is not curable, but it is very treatable.

@A MyMyelomaTeam Member,
I’m sorry to hear that. Some people don’t respond to treatment or are high risk. May he rest in peace.🙏🏻💫🌈

Mentioned Users

A MyMyelo...

My husband had a stem cell transplant May of 2021 and passed away April of 2024.

Brian,
We all respond differently and have different types of MM. I have 2 cousins who have had it for years and years and another friend who has had it for years and years. AI is telling you old information. Currently, the outlook is good.
Paula🌹

Thanks