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How Long Can You Live With Multiple Myeloma

A MyMyelomaTeam Member asked a question πŸ’­
Worthington, WV
December 11, 2022
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A MyMyelomaTeam Member

I don't think anyone can answer this question. Myeloma is really many diseases. It affects each patient differently. Survival rates are steadily rising every year πŸ‘πŸ’ͺπŸ’•πŸ™ I was really sick at diagnosis. Getting a great myeloma specialist is a must with this disease. I have high risk disease, so a stem cell transplant was recommended. Maintenance therapy and close monitoring help. I am very careful to avoid infections as well. A good diet and exercise also helpπŸ’•

December 11, 2022 (edited)
A MyMyelomaTeam Member

I was diagnosed on Oct 2016. Did the chemo and had a stem cell transplant in Sept 2017. My Kappa/Lambda light chains and the ratio have been in the normal range since July 2017 when I hit remission. I was on Revlimid maintenance (10 mg, then 5 mg, then 2.5 mg) till my doctor took me off it in March 2021. Since then, all my counts have stayed the same, my protein levels have hit the normal range since early 2016 (when started noticing something wasn't right, which lead to my diagnosis), and my last round of blood work showed my WBCs finally were at the low end of normal. I agree with what others have said, eating well and exercising help a lot. I also don't dwell on having cancer. Other than when I take my vitamins and my acyclovir (anti-viral script), I tend to forget about having mm. Prayer also has helped, a lot. I believe what has gotten me here is prayer and God overseeing my doctors and the treatment they prescribe.

December 21, 2022
A MyMyelomaTeam Member

What i have learned since living with MM for the last two years, is to trust the process, follow the process and do not worry about anything. Believe that you will live if you want to live. Pour out your heart to your God for help and he will see you through, to live as long as his purpose in life is finished through you.πŸ™‚

December 17, 2022
A MyMyelomaTeam Member

I was diagnosed in October of this year and this is the top question I had for my oncologist too. He said, β€œYou are going to live a long time. Today, even though multiple myeloma is incurable, it is treated more like a chronic disease instead of a terminal cancer. There have been significant medical advances in treatments over the last decade and this will continue.” At 62 years, I was diagnosed at stage 1 with standard risks and I was in very good health leading up to the diagnosis. Even though I do have some complications I am believing I am going to live a very long time (hopefully 20+ years) by learning as much as I can about MM, partnering with my oncologist(s), keeping my body in good health by eating a very healthy diet (primarily plant based) and staying active. Lastly, I’m trusting that God will be with me regardless of the bumps in the road that I will have to endure (II Corinth 4:16-18).

December 11, 2022
A MyMyelomaTeam Member

My husband Jim has had MM for 26 Yrs, been on almost everything I deal with the VA in LV>KS
butnow have heart failure lost lots of wt. verytired I will be 81 in Jan 23 not sure if they will
keep me on meds I am now in remission been a long journey,

December 11, 2022

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