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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

There Seems To Me To Be A Difference In Treatment In The UK To The USA I Do Not Have A Clue What My Numbers Are I Was Told At The Beginning.

A MyMyelomaTeam Member asked a question 💭
Maidstone Kent England

I only know I have I think lg kappa and light chains.

September 19
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A MyMyelomaTeam Member

I have IGG KAPPA Myeloma
Had initial treatment from August 2015 thru December 2015 then had a stem cell transplant in January 2016. Went into remission for 7 1/2 years I was on maintenance of velcade then changed to ninlaro during covid. Started a new treatment for relapsed mm in Nov 2023 of pomalyst 4mg and Dara faspro along with 20 mg of dexamethasone. As of June 2024 my m spike is 0 kappa light chains are in the normal range. I get monthly Dara faspro injections and the pomalyst is now 2mg 21 days on 7 days off. I also get monthly ivig as the pomalyst brings down my immunoglobulins below normal. I get monthly lab tests.

September 19
A MyMyelomaTeam Member

Thank you the last two consultations being every 3 months I am told she has not had my light chains results back and my kidney down to 57 per cent.So I will have to push her for some clarity.

September 19
A MyMyelomaTeam Member

Ask your doctor. It looks like you might be IgG Kappa myeloma? IgG being the heavy chain and Kappa being the light chain. I don't know without seeing your chart. The US and UK uses different units of measure for labs. Liters vs deciliters for example.

September 19 (edited)
A MyMyelomaTeam Member

I couldn't have a stem cell treatment due to adverse reactions to medication it is good your doctors are on it here at the moment huge backlogs because of strikes.

September 20
A MyMyelomaTeam Member

It sounds like you're concerned about differences in myeloma treatment between the UK and the USA and are unsure about your specific health metrics. Here are some steps you can take to better understand and manage your myeloma treatment:

1. Know Your Policy: Understand the details of your insurance policy, including read more

It sounds like you're concerned about differences in myeloma treatment between the UK and the USA and are unsure about your specific health metrics. Here are some steps you can take to better understand and manage your myeloma treatment:

1. Know Your Policy: Understand the details of your insurance policy, including out-of-pocket expenses, copayments, and coverage guidelines. This is crucial for managing ongoing healthcare costs.

2. Scrutinize Your Medical Bills: Ensure that your medical bills are accurate. Request detailed, itemized bills and compare them to the services you received. Errors are common, so it's important to verify all charges.

3. Compare Bills to EOBs: After confirming the accuracy of your bills, compare them to your Explanation of Benefits (EOB) from your insurance company. Address any discrepancies immediately to avoid overpaying or facing collection issues.

4. Take Detailed Notes: Keep detailed records of all your medical bills and communications with healthcare providers. This can help resolve any future billing issues.

5. Address Billing Errors Immediately: If you find errors, contact your provider promptly to correct them.

6. Understand Out-of-Network Costs: Be aware of how your insurance handles out-of-network providers. This can significantly impact your out-of-pocket costs.

For more detailed information, you can refer to the article "How To Reduce Medical Bills: Top Financial Expert Shares 10 Tips" on MyMyelomaTeam.

If you need specific information about your health metrics, consider reaching out to your healthcare provider for a detailed explanation of your current status and treatment plan.

 This AI-generated response comes from MyMyelomaTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

How To Reduce Medical Bills: Top Financial Expert Shares 10 Tips | MyMyelomaTeam
How To Get Multiple Myeloma Treatment Without Insurance | MyMyelomaTeam
September 19

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