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I Noticed That My Eyesight Is Worse Since I Started Treatment. I Have Been Nearsighted All My Life .

A MyMyelomaTeam Member asked a question 💭
Independence, MO

Now I can't really see unless I take off my glasses and pull the reading material up to my nose. So frustrating, particularly since I used to be fast at typing and now I have to peck.

September 17
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A MyMyelomaTeam Member

My near vision improved after the stem cell transplant. I figure it is because I also have MS and it has caused vision issues for me in the past and the transplant caused a change in my MS.

September 17
A MyMyelomaTeam Member

Hi, my eyesight has also gotten worse. It feels like a sticky substance coating my eyes. Hopefully the eye doctor can give me something to help this. 18 months of chemo and this just started about a month ago. I was on Revlimid and now Pomalyst.

September 17
A MyMyelomaTeam Member

Dan,
I would call the new local oncologist and find out how to become his/her patient. If I don’t hear back in 48 hours, I figure they are never getting back to me. As to your eyes, it may be you have more floaters and a new prescription. My eyesight has actually gotten better since I’m eating a grated carrot a day in my salad. Some MM meds can affect the eyes also.
Paula🌹
https://www.oncologynurseadvisor.com/news/smold...

Curative Approach to Smoldering Myeloma May Prevent Progression - Oncology Nurse Advisor
Curative Approach to Smoldering Myeloma May Prevent Progression - Oncology Nurse Advisor
September 17
A MyMyelomaTeam Member

@A MyMyelomaTeam Member hi Paula I have an eye appointment next week to check my eyes and discuss the diagnosis with the eye doctor, is there anything I need to cover besides the obvious diagnosis and the sometimes blurred vision I’m having, that could just be I need to update my prescription? Thanks, this disease is from head to toe. At this stage, no treatment, so my eye issue is likely just my age, however, w treatment, it’s open season on out body, I plan to ask for a full body scan, like u said, at some point once I get switched back over to Medicare but that won’t beconme effective until Jan 1 2025, so I have to wait, which I don’t like but seems I have no choice. I requested a new local onc doc last Thursday via email and I have not heard back from the patient manager.

September 17
A MyMyelomaTeam Member

It's not uncommon for multiple myeloma treatments to affect your vision. Here are some potential causes and symptoms related to eye complications from myeloma and its treatments:

Potential Causes
- Side Effects From Treatments: Medications like Bortezomib (Velcade) can cause eye and vision issues.
- Infections: Myeloma Show Full Answer

It's not uncommon for multiple myeloma treatments to affect your vision. Here are some potential causes and symptoms related to eye complications from myeloma and its treatments:

Potential Causes:
- Side Effects From Treatments: Medications like Bortezomib (Velcade) can cause eye and vision issues.
- Infections: Myeloma and its treatments can make you more prone to eye infections due to a weakened immune system.
- Direct Myeloma Impact: Myeloma cells can form tumors (plasmacytomas) in the eyes or optic nerve, causing vision problems.

Symptoms to Watch For:
- Blurred vision
- Floaters
- Flashes
- Dry eyes
- Sore eyelids
- Conjunctivitis (pink eye)
- Vision loss

Recommendations:
- Consult Your Specialists: Speak with your myeloma specialist and ophthalmologist to identify the cause and get appropriate treatment.
- Regular Eye Exams: Regular check-ups can help monitor and manage any changes in your vision.

If you notice any new or worsening symptoms, contact your healthcare team immediately.

September 17

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