Neuropathy
My neuropathy started before my MM diagnosis and treatment and has gotten worse since I started RVd treatment. Not sure if a medication is causing it to worsen or just the disease itself. Is there an alternative to Velcade or has anyone noticed improvement in neuropathy with decrease dosage? Trying to weigh my quality of life with also trying to get my numbers down which the meds seem to be effective.
Day 4 on the Scrambler - It’s working quite well. I’ve added a detailed Post to my Updates @A MyMyelomaTeam Member with Links to the device and published Articles
Day 2 at Johns Hopkins - Baltimore for my Scrambler treatment. Didn't take my 2pm Oxy - had my 45 minute treatment at 2pm. Now at 5:30pm - both feet and hands sting a little but not bad enough to take an Oxy at this time. Unfortunately, the device only has 5 leads, 2 for each leg and 1 for my hand so my hands only get 1/2 of the treatment time (we switch mid treatment). He's scheduled back to back so he can't extend my time.
I'm going to build him a simple splitter connector so he can hook-up a second lead to the 5th channel so I can get full treatment on both my hands during a session. He gave me one of his cables (its like a 2 lead ECG cable) to use so I can build him a splitter.
On ward & Up ward
my doc stopped valcade the first time I complained about neuropathy. Didnt stop it but didnt get worse. Guess its pretty common.
I'm always watching Webinars. One doctor said that Velcade can start given us neuropathy after one dose. I started feeling tingling on the bottom of my feet right away. Thought it was in my head, but apparently it wasn't. Anyway, it works great on myeloma. But geez, the neuropathy can be debilitating. I take the b Complex and Alpha Lipoic acid every day. It does seem to help. 💕
Talk to your doctor to see if they can give you something else. I also take Alpha Lipoic acid and b Complex for neuropathy. My doctor recommended them💗
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