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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have MGUS And Neuropathy?

A MyMyelomaTeam Member asked a question 💭
Bradenton, FL
April 21
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A MyMyelomaTeam Member

Yes, I have extremely painful burning neurophathy primarily in both hands, my feet and ankles more numbness than pain. At times the left leg swells and hurts. The pain/steroids prescribed for me are Gabapentin, Methadone, Dexamethasone, Morphine and Tylenol. I've reached the tolerable limit on these for pain management. Not 100% but it eases daily life a bit.

April 26
A MyMyelomaTeam Member

I have tingling, primarily in feet, sometimes in hands. My toes are sometimes sore. I feel like taking an Advil or Tylenol or even Low Dose Aspirin would resolve but have been avoiding doing so. I'm thinking I should just take something occasionally, not sure. I should point out that my dermatologist said I had perniosis previously which usually resolves itself as the weather warms (or I go to FL). Not sure if this is that or is a newer thing. It seems more noticeable or is it just the power if suggestion.

April 23
A MyMyelomaTeam Member

Yes, many individuals with Monoclonal Gammopathy of Undetermined Significance (MGUS) experience peripheral neuropathy. This condition is a common symptom in clonal plasma disorders like MGUS, where individuals might feel pain, numbness, weakness, or a pins-and-needles sensation in various parts of their body. Members of the Show Full Answer

Yes, many individuals with Monoclonal Gammopathy of Undetermined Significance (MGUS) experience peripheral neuropathy. This condition is a common symptom in clonal plasma disorders like MGUS, where individuals might feel pain, numbness, weakness, or a pins-and-needles sensation in various parts of their body. Members of the MyMyelomaTeam community often discuss their experiences with both MGUS and neuropathy pain, sharing their personal stories and the impact it has on their daily lives.

April 21
A MyMyelomaTeam Member

Ty.

April 23
A MyMyelomaTeam Member

Yes he does.

April 23

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