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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else With MGUS Have Trouble Sleeping At Night Because Their Hip Bone Hurts So Bad After You Lay On Your Side For A Little While?

A MyMyelomaTeam Member asked a question đź’­
Ravenden, AR
September 1
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A MyMyelomaTeam Member

Yes, I've had that problem for several years now...Back, hip, rib, and upper arm but not necessarily all at the same time.

I've had X-rays & CT scans, but nothing has appeared except arthritis in my back, and I have osteopenia, very close to osteoporosis.

Since I'm only MGUS (but no bone marrow biopsy yet), my doctors do not think these issues are related.

I know I'm getting older but I didn't realize having all these aches and other symptoms was "normal" aging.

I pray you get some relief, I feel for you and all others going through pain! 🙏❤️

September 1
A MyMyelomaTeam Member

Valerie,
I 2019 I was diagnosed with Osteoporosis (-3.6) I stopped driving because my hip hurt so bad and my leg would not work when it was time to brake. I wasn’t diagnosed with MGUS until the following year. The Rheumatologist wanted to start me on Zometa. I refused because of the side effects and because I am always needing dental work. I started trying out different Calcium supplements trying to make my bones strong again. Taking 1200 or more of MRM Bone Maximizer III has helped. I take it with D3, K2 , and Vitamins A & E. D3 helps with absorption and K2 tells it to go to the bones instead of clogging the arteries. It’s 5 years later and I have only broken a rib while leaning over a large recycle bin. Back then, I could not sleep. The pain was too much. It’s important to get a DEXA scan to find out if you have osteoporosis or osteopenia. Even with taking the supplements, MM is constantly trying to break your bones down. You need to fight back. My pain comes and goes. If it comes back, I look at my diet and realize I have had too much salt in my diet, or had a soda or caffeinated drink. These all take calcium out of your body. I am mostly pain free now.
Paula🌹

September 2
A MyMyelomaTeam Member

Right same here it just seems strange that I never had an issue with it before , but it had started right before my diagnosis

September 2
A MyMyelomaTeam Member

Interesting

September 7
A MyMyelomaTeam Member

Many people with multiple myeloma experience bone pain, which can interfere with sleep. Bone pain is a frequent and sometimes debilitating symptom, often described as deep, dull, or excruciating. This pain can make it difficult to find a comfortable sleeping position, leading to sleep disturbances. If you are experiencing read more

Many people with multiple myeloma experience bone pain, which can interfere with sleep. Bone pain is a frequent and sometimes debilitating symptom, often described as deep, dull, or excruciating. This pain can make it difficult to find a comfortable sleeping position, leading to sleep disturbances. If you are experiencing similar issues, it is important to discuss them with your doctor for appropriate management.

 This AI-generated response comes from MyMyelomaTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Multiple Myeloma: Bone Lesions, Damage, and Pain | MyMyelomaTeam
Insomnia and Multiple Myeloma: Managing Sleep Problems | MyMyelomaTeam
September 1

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