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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Taken Revlimid? Does Anyone Take B12 Shots? Thank You

A MyMyelomaTeam Member asked a question 💭
Liberty Hill, TX

As I get my chemo in the room with others, I notice 99% of us are getting the exact same treatment. I understand it but in a way, I don't. Yes, I'm going to speak with my doctor.

August 7
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A MyMyelomaTeam Member

I take Revilimid 25mg been taking it for 2 years, 21 days then off 7. I take a low dose aspirin everyday because Revilimid can cause blood clots. Also take a velcade shot 1x a month. I take 1200mg of calcium a day, vitamin C, vitamin B complex and Vitamin D3 along with a multi vitamin. I am in remission and hoping I stay that way

August 7
A MyMyelomaTeam Member

I've been on revlemid 6
months. Went from 25 mg to 15 mg last month. I'm grateful for this medicine. Not much reaction. Tired a good bit.

August 7
A MyMyelomaTeam Member

I started for 4 months with 25 mg for 21 days on, 7 days off. Then moved to 15mg for same time frames, 21 on and 7 days off. I wondered what folks are taking for maintenance.

August 7 (edited)
A MyMyelomaTeam Member

Hi Corazon
I’ve been on Revlimid for 3 years now. I started out 25 mg, too much for me. Then 15, now I’m on 10mg. 21 days on 7 days off. I’m in partial remission, I’ve never reached complete.
Also my husband has smoldering myeloma with some kidney issues that we’re checking out now🤷🏽‍♀️. Take care!

August 10
A MyMyelomaTeam Member

I have been taking 10mg of Revlimid daily….no days off. Started taking it after my 100 days of quarantine after my SCT. Been on it now for about a year. (Took higher dose 25mg Revlimd, along with Dexamethasone and Velcade for 5 months prior to my SCT).
I go for a B12 shot once a month too! I take D3 and Xarelto as I had a DVT prior to my SCT. So far, so good with my current regimen!

August 7

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