Connect with others who understand.

Sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

If You Were A Hematologist/Oncologist Who Specializes In MM, What Would You Do?

A MyMyelomaTeam Member asked a question šŸ’­
Santa Ana, CA

Would you only offer them treatment, which in some cases helps, and others affects quality of life, but would you also have your patients talk to a Naturopath? It seems diet, supplements and exercise really make a difference.

July 24
ā€¢
View reactions
A MyMyelomaTeam Member

I would rely on my hematologist first definitely and ask what naturopathic complementary medicine. You cannot treat MM with natural.products alone. All hematologists I know will properly advise you on any naturopathic complementary medicine. Without this proper advice you could be doing serious harm. A lot of things are natural, including many poisons. The chemo and SCT are proven to work. Natural remedies are not. Even certain over the counter supplements can cause MM problems. Be careful.

July 24
A MyMyelomaTeam Member

Be sure I was aligned with a teaching hospital that had a progressive cancer facility so that I would be at the top of my game in cancer treatment and that I could give my patients the very best care possible

July 24
A MyMyelomaTeam Member

@A MyMyelomaTeam Member I am so sorry they did you that way, they should have sent you to a MM specialist!!! I am glad your PCP put you on palliative care, but I hope that you could see a MM specialist, at least for a consultation in conjunction with care from your local oncologist. God bless you!šŸ•ŠļøšŸ™ā¤ļøšŸ•Æļø

July 24
A MyMyelomaTeam Member

I would do both! As a MM Oncologist I would: 1.) ouline the basic treatments wih anti-clonal antibodies hat are protein specific that answer to the evidence found using diagnostic testing, and what can REASONABLY be expected. 2.) Go over the usual reactions and side effects associated wih the treatment and express how to best mitigate what is experience by them. Both Naturalpaths, dieting, exercise and other self-administered treatments would be encouraged. 3.) Form a local therapy group of patients going through MM and encourage bonding and sharing of ideas regarding MM and treatment possibilities. Eye-to-eye contact with others is a great source of encouragement and can be a great source of info---just like here on this site. 4.) Finally, I would check up on my patients personally by phone periodically to see how they are doing, much like my new cardiologist does. And if they feel comfortable about it, pray with them.
Sometimes one wonders if the medical staff actually cares about YOU! Are tthey meerly engineering your treatment, checking off the boxes, or are they shepherding you through the treatment process letting you know they are with you in it.
There are great doctors, nurses, and practitioners out to be had, and there are the others. It is up to you to find one that you are confident in, and that may take time. Also, ask questions, do research, and buy the medical staff some pizza---they have to deal with a lot of people suffering, maybe losing them, and certainly celabrating the successes. As you know MM can be a long term disease, settle in for the long haul and enjoy the good times!

July 26
A MyMyelomaTeam Member

Pbaldini: Treat the whole person & have meetings with the entire team to coordinate the treatment plan, including financial resources: grants, funds, organizations tailored to your needs. šŸ¤—šŸ‘‹

July 24

Related content

View All

I Would Like To Know If A Hematologist And A Multiple Myeloma Specialist The Same? Yes Or No Iā€™m Still New

A MyMyelomaTeam Member asked a question šŸ’­
Aberdeen, NC

What Is The Difference Between The Hematology Dr And The Multiple Myeloma Specialist

A MyMyelomaTeam Member asked a question šŸ’­
Detroit, MI

Hemotologist On Your Team

A MyMyelomaTeam Member asked a question šŸ’­
Las Vegas, NV
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in