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Has Anyone Had The Stem Cell Transplant? Would You Do It Again? 70 Diagnosed 6 Months Ago? Doctors Say I'm A Candidate. What Was The EDGE?

A MyMyelomaTeam Member asked a question 💭
Carrollton, OH
July 15
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A MyMyelomaTeam Member

I am 34 days post transplant. I had a very bad time of it with the diarrhea, nausea, no appetite, and then I had bone pain at night towards the end of 2 weeks. For me it was pretty bad but I was hearing from some of the nurses that I seemed to be have more symptoms and worse than most. By the way, I am not a big baby, I worked the entire day I was "in labor" with my son.

July 17
A MyMyelomaTeam Member

Had a SCT in 2018 in London-unavailable in Mauritius 🌴⛱️🌞whr I live. It was a rough & tough road dur 3 wks in hospital. There r days high fever wd kp me poorly in bed & other better days Whn I wd hv a mini treadmill brought to my room & I wd gradually walk & use the stretch bands. Nausea & loose bowels & loss of appetite r part of it but bearable. Efficient & compassionate staff made it. I hv just relapsed nearly 6 yrs after SCT. I wd certainly hv done it agn if only I was still eligible. I was bk 2 my normal active life 4 months after STC.👍 Thk uLord 🙏 4 the gift of life ❤️

July 17
A MyMyelomaTeam Member

Be Positive...Try to avoid infection...Stay at least ३ months isolated.

July 16
A MyMyelomaTeam Member

Had a stem cell transplant last July and yes I would do it again. It’s not that bad went thru nausea, fatigue, but so worth it I’m in remission it’s been a year

July 16
A MyMyelomaTeam Member

Please read the Dana-Farber Dec 23 Press Release. Dana-Farber Now Says, if you have have a Very Good to Complete Response to Treatment - Do Not Get the SCT Upfront.

They say, Keep it In Reserve for Just Incase, stating the SCT causes too much permanent damage to the immune system, resulting in more frequent of more serious natured infections.

https://www.dana-farber.org/newsroom/news-relea...

DETERMINATION trial subgroup analysis suggests potential strategies for individualization of myeloma treatment | Dana-Farber Cancer Institute
DETERMINATION trial subgroup analysis suggests potential strategies for individualization of myeloma treatment | Dana-Farber Cancer Institute
July 16

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