Connect with others who understand.

Sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Guidelines Crisis Accessibility
Resources
Emotional Well-Being Living with Myeloma Myeloma Condition Information Myeloma Symptoms Myeloma Treatments All Resources
About MyMyelomaTeam
What is This Site Terms of Use Privacy policy
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Would Like To Know Who Has Had Car-t Treatment And What Was The Outcome And Was It Worth It And The Side Effects?

A MyMyelomaTeam Member asked a question 💭
Naples, FL
July 11
•
View reactions
Multiple Myeloma Prognosis: Survival Rates, Light Chain, and More Factors Read Article...
A MyMyelomaTeam Member

My wife had CAR-T infused on June 16, 2023. It was our last choice. She passed on her birthday, July 13, 2023. If we had to do it all over we would have had Stem cell transplant at earlier stages when she was close to remission. Today would have been her birthday.

July 13
A MyMyelomaTeam Member

CAR-T cell therapy for multiple myeloma has shown promising results, but it comes with potential side effects. Here are some key points from the knowledge base:

Outcomes
- Remission Rates: About 2 out of 3 people were in remission for at least one year.
- Effectiveness: It has worked well for many with hard-to-treat Show Full Answer

CAR-T cell therapy for multiple myeloma has shown promising results, but it comes with potential side effects. Here are some key points from the knowledge base:

Outcomes:
- Remission Rates: About 2 out of 3 people were in remission for at least one year.
- Effectiveness: It has worked well for many with hard-to-treat myeloma, even when other treatments failed.
- Long-term Efficacy: It's too soon to determine long-term effectiveness.

Side Effects:
- Common Side Effects:
- Infections
- Muscle aches
- Diarrhea
- Nausea
- Swelling
- Fever
- Cough
- Headache
- Loss of appetite
- Serious Side Effects:
- Cytokine Release Syndrome (CRS)
- Nervous system problems
- Immune effector cell-associated neurotoxicity syndrome
- Macrophage activation syndrome
- Hemophagocytic lymphohistiocytosis
- Increased risk of other cancers

Considerations:
- Discussion with Doctor: It's crucial to discuss the risks and benefits with your doctor.
- Hospital Stay: Patients often need to stay in the hospital for several weeks post-treatment to monitor side effects and effectiveness.
- Certified Locations: The treatment is available only at certified locations due to the need for specialized care.

Support:
- MyMyelomaTeam: A social network for people with multiple myeloma to share experiences and support each other.

For more detailed personal experiences, you might consider joining a community like MyMyelomaTeam.

July 11

Related content

View All

Has Any Done A CAR-T Treatment?

A MyMyelomaTeam Member asked a question 💭
Laredo, TX
May 21, 2023

For Those Who Have Had Car T Cell Therapy. How Did Your (or Your Loved One) Body Respond/how Did You Feel After The Procedure (side Effects)

A MyMyelomaTeam Member asked a question 💭
Greensboro, NC
June 5

What Treatment Options Have You Used For Relapsing MM?

A MyMyelomaTeam Member asked a question 💭
Colorado Springs, CO
April 19
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in