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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

For Those Who Have Had Car T Cell Therapy. How Did Your (or Your Loved One) Body Respond/how Did You Feel After The Procedure (side Effects)

A MyMyelomaTeam Member asked a question 💭
Greensboro, NC

For those who have had Car T Cell therapy. How did your (or your loved one) body respond/how did you feel after the procedure (side effects), from infusion up to 8 weeks or so after? My loved one whom I am primary care giver for, will be going through this process soon and although everyone’s experience may differ we would like to know how others with MM experience has been.

I know someone with lymphoma whose side effects after the Car T has been pretty bad but I read that it can be worse for… read more

June 5
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A MyMyelomaTeam Member

After undergoing CAR-T cell therapy for multiple myeloma, individuals may experience a range of side effects. Here are some common responses and side effects:

- Cytokine Release Syndrome (CRS): This is a common side effect where high levels of cytokines can cause flu-like symptoms such as fever, chills, breathing problems read more

After undergoing CAR-T cell therapy for multiple myeloma, individuals may experience a range of side effects. Here are some common responses and side effects:

- Cytokine Release Syndrome (CRS): This is a common side effect where high levels of cytokines can cause flu-like symptoms such as fever, chills, breathing problems, and confusion. In most cases, CRS is mild, but it can be severe and life-threatening in rare instances.
- Neurotoxicity: Symptoms may include confusion, trouble speaking or listening, and stupor.
- Other Common Side Effects:
- Infections
- Muscle aches
- Diarrhea
- Nausea
- Swelling
- Fever
- Cough
- Headache
- Loss of appetite
- Tiredness

It's important to discuss potential side effects with your healthcare team to understand which symptoms may indicate more serious health problems.

 This AI-generated response comes from MyMyelomaTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

CAR-T Cell Therapy for Multiple Myeloma: What Is It? | MyMyelomaTeam
Carvykti (Ciltacabtagene autoleucel) for Myeloma | MyMyelomaTeam
June 5

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