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I Keep Reading Stuff Like - “Keep Up The Good Fight, Be Active, Etc..” What If We Don’t Feel Like It ? Stop Pushing !

A MyMyelomaTeam Member asked a question 💭
West Newbury, MA
May 25
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A MyMyelomaTeam Member

I used to over train for sporting events, get injured, miss the event and then miss the next 2 events recovering. One day of ego or fear driven over doing it or not recovering can set you back days. I do think we have a warped sense of "cancer fighers" .I believe I am a "cancer survivor " that for me does not end and somedays I have to retreat and regroup.
Yesterday I got over 40mg of dex during treatment, the insomnia was unmanageable and no sleep. At 6 am I made my plan. Eat breakfast, work on the truck in an insomnia haze (lol) then at noon take a nap, use the drugs. Atavan, anti-nausea, Melatonin, a bottle of water, lights out ,my favorite music and NO alarm clock.l woke up at 8:30 pm and thought it was the next day (lol).
I feel fantastic and will now be fully recovered for the rest of the week.
So what should be a simple 8 hour Friday infusion is now a 2 day process. I accept it as part of the treatment and I also think I get better results and less side effects.
It took me 4 weeks to figure out this process and I think every one should do it.
Prioritize your life; God, treatment, family, helping others.

May 25 (edited)
A MyMyelomaTeam Member

Love the comment! You tell 'em. Take a break. It's OK. Tell' em Bob said so! 🙂 By the way, this can only run your life if you let it. Don't let it.

May 25
A MyMyelomaTeam Member

Love your reply Bob because that’s the way I feel about it too. Yeah it’s a daily struggle but as long as I can get some enjoyment out of life I will keep on trucking. I was at the same point at one time but I ended up in the hospital with influenza A and since I survived that after not having had any chemo since March except for one session in September my immune system probably wasn’t functioning that well so I figured something was telling me it’s just not your time yet so onward and upward.

May 26 (edited)
A MyMyelomaTeam Member

Julie,
Let go of the stress of who you think you should be or what you should be doing, and don't let anyone push you into something you don't want to do. I find going to Mass everyday for a 1/2 hour gives me peace. Starts my day out right. I've lost that these last few weeks, when my legs weren't working. I miss it.
Paula🌹

May 26
A MyMyelomaTeam Member

I extra-appreciate this post xo The Superbowl (I'm in Chiefs territory!) was my "reckoning". I inexplicaby (as usual) felt awful, but attended a gathering bc I was too -- whatever, to admit I wasn't up to it. I ended up just being the proverbial wet blanket (snooore, huh? Were you talking to me?) No one understood; I didn't expect them to. From now on I plan to preemptively hum that old tune "Mama Told Me Not To Come", and heed it. My best to you; all of us.

May 26

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