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Hello my dear friends
Has anyone else had this problem? If so what was the treatment.
I want you to know what a comfort you all are to me I feel so blessed having my MM club. Have a lovely weekend xx

This is a great international online forum we have here but do you belong to any others?

Hi - just wondering if anyone in maintenance has ever had a low neutrophil number? I ended up getting IVIG to boost up the number. Doctor didn’t seem to concerned since the other numbers are ok but I’m just curious to see if anyone has experienced this before and what the reason for it was. Thank you 😊

I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.

Ok so here I go again. 😔. I have now lost my taste. Nothing has any taste and most things I eat makes me sick. I've tried just plain toast but that sits heavy. I know I've read people say they have lost their taste so I'm thinking it's normal just wonder does it go on now till I'm done with chemo? Any advice on things to eat? I think this is the crazyest ride I've been in. So much unknown.

I would like to know what the '(CKD-EPI)', after the GFR means?
So my kidneys are trying to tell me something apparently and it could be many things, according to a search ( age, weight, activity etc ).
SO, should I be concerned? My blood tests from yesterday are just starting to be posted in my patient portal, so I don't know what the rest of the results are yet. I don't usually have a problem, kidney wise.

Due to little activity during induction therapy body is lacking any kind of tone. Any suggestions on where to start?

This is a better defined test of the Kappa and Lamda heavy and light chains

This test is available for all Ig types. It more accurate than SPEP and IFE

If so, where are you getting it from and is it covered by insurance

I’ll be looking into that and add to this Post

Mass Spectrometry Testing (MST) is a far more accurate way to test for MM activity but I think it’s only available at limited facilities

If you’re getting MST, where ?