Any Of Team Member May Experience A Metallic Taste During The Chemo Or After The SCT Especially When Eating,drinking And Feeling Dry Mouth. | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Any Of Team Member May Experience A Metallic Taste During The Chemo Or After The SCT Especially When Eating,drinking And Feeling Dry Mouth.
A MyMyelomaTeam Member asked a question 💭
posted April 28
View reactions
A MyMyelomaTeam Member

After my SCTs everything tasted dry like sawdust but I lost a dear friend to MM and remember him saying everything tasted metallic? It’s from the heavy chemo that they give you the SCT and it screws up your taste buds,the joy of chemo not. Have a great night.

posted April 28 (edited)
A MyMyelomaTeam Member

Using silverware during chemotherapy seems to cause Metal Mouth; my acupuncturist suggested using plastic forks, spoons, etc to eliminate Metal Mouth.

posted April 28
A MyMyelomaTeam Member

Yes
Sarah it is always feel the uncomfortable and it feel very awful but l wash with the mouthwash it feel more uncomfortable

posted May 5
A MyMyelomaTeam Member

Moh, I’m sorry I did not respond to your question earlier. When I first took Revlimid I had the metallic taste. However since then (over a year) I’ve not had it.

But I noticed that I sometimes can smell it. As I breathe through my nose especially at night (after I take the pill) I smell a distinct odor.

Likewise my stool has a different aroma, not to be disgusting but it is what I’ll call Revlimid fragrance.

The wife says, “you stink, flush that toilet!”

Revlimid does a number on our digestive tract.

posted May 1
A MyMyelomaTeam Member

I don't get a metalic taste but at times I have dry mouth that comes and goes. I have not had a stem cell transplant. I will say my taste buds changed immediately when I started chemo and I had little appetite. I loved coffee and chocolate and just about didn't drink coffee or eat chocolate up until recently. When I relapsed in January of this year I was put on another chemo drug darzalex with 2 chemo drugs I was already taking. For some reason I am now able to enjoy a cup of coffee and eat a little chocolate. My appetite is a good bit better too. I have no idea why. I'm into 1 year and 6 months of my diagnosis of MM. Makes you wonder if I'm actually better OR it's just my personal reaction to everything.

posted April 28 (edited)

Related content

View All
After Stem Cell Harvest
A MyMyelomaTeam Member asked a question 💭
I’m Scheduled To Have A Stem Cell Transplant Next Month, And Wanted To Know If The Process Was Rough Or Easy?
A MyMyelomaTeam Member asked a question 💭
Taste
A MyMyelomaTeam Member asked a question 💭