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Any Of Team Member May Experience A Metallic Taste During The Chemo Or After The SCT Especially When Eating,drinking And Feeling Dry Mouth.

A MyMyelomaTeam Member asked a question 💭
Singapore
April 28
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A MyMyelomaTeam Member

After my SCTs everything tasted dry like sawdust but I lost a dear friend to MM and remember him saying everything tasted metallic? It’s from the heavy chemo that they give you the SCT and it screws up your taste buds,the joy of chemo not. Have a great night.

April 28 (edited)
A MyMyelomaTeam Member

Using silverware during chemotherapy seems to cause Metal Mouth; my acupuncturist suggested using plastic forks, spoons, etc to eliminate Metal Mouth.

April 28
A MyMyelomaTeam Member

Moh, I’m sorry I did not respond to your question earlier. When I first took Revlimid I had the metallic taste. However since then (over a year) I’ve not had it.

But I noticed that I sometimes can smell it. As I breathe through my nose especially at night (after I take the pill) I smell a distinct odor.

Likewise my stool has a different aroma, not to be disgusting but it is what I’ll call Revlimid fragrance.

The wife says, “you stink, flush that toilet!”

Revlimid does a number on our digestive tract.

May 1
A MyMyelomaTeam Member

I don't get a metalic taste but at times I have dry mouth that comes and goes. I have not had a stem cell transplant. I will say my taste buds changed immediately when I started chemo and I had little appetite. I loved coffee and chocolate and just about didn't drink coffee or eat chocolate up until recently. When I relapsed in January of this year I was put on another chemo drug darzalex with 2 chemo drugs I was already taking. For some reason I am now able to enjoy a cup of coffee and eat a little chocolate. My appetite is a good bit better too. I have no idea why. I'm into 1 year and 6 months of my diagnosis of MM. Makes you wonder if I'm actually better OR it's just my personal reaction to everything.

April 28 (edited)
A MyMyelomaTeam Member

I like the plastic silverware idea. Another idea I heard was rinsing with baking soda. I smell different oders and different taste sensations all the time. I just get used to it.

April 28

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