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Hi Everybody, I’m Feeling Good Today?

A MyMyelomaTeam Member asked a question 💭
Singapore

Hi everyone
Can anyone in the MMTEAM share about weight loss,appetite change and how to maintain the body weight.l have lost around five kilograms along my chemo n treatment, thank you

February 23
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A MyMyelomaTeam Member

Lots of good advice here Moh. Many articles I have read stress that protein is important for us with myeloma. Nuts are a high calorie way to get good nutrition as well. At first I avoided all sugar because I had heard that cancer cells love sugar BUT further research showed that cancer isn’t that smart. It is good to have a healthy body so “everything in moderation” is my main goal now. (“Life is short - eat the cake!” as they say) If you are in the “I need to put on weight” mode, for a while you can also add Ensure or Boost in between meals to add quick calories.
If I could, I would send you the extra 10 pounds I have put on in the last year! 🤣
God bless you MM brother - I hope to hear that you are gaining weight soon. 🙏🏻
Dawn 😊

February 23
A MyMyelomaTeam Member

I didn’t have a problem losing my appetite in fact because of the Dexamethasone I couldn’t get filled up and was eating constantly but not gaining any weight but not losing weight either. Eating more small meals is a good idea and I can’t eat as much in one sitting like I used to and sometimes you have to force yourself to eat. Not skipping meals isn’t a good idea and eating a balanced diet is a good idea.

February 23 (edited)
A MyMyelomaTeam Member

Hi Moh, I’ve lost just about 30 lbs since I was originally diagnosed. I’ve been thru 2 phases of treatments. First phase was Velcade, Dexamethasone & Revlimid for 5 months and only lost about 10-12 lbs during that time. Then phase 2 I had my SCT and I’m now on Revlimid 10mg as maintenance daily. Since my SCT I’ve lost about another 18-20 lbs and my appetite is about 1/2 of what it was when I was diagnosed.. I was a bit overweight when diagnosed so the first 10-12 lbs didn’t bother me too much, but I definitely don’t need or want to drop anymore now. I find if I eat smaller meals and more often, I do better. I can’t eat as much at one sitting as I used to. I make sure my meals are nutritionally balanced. A good healthy protein, vegetables and fruit, and a little starch. I even have dessert more often, as I have a slight sweet tooth (mostly for ice cream!) Luckily I’m not bothered with any diarrhea side effects that can affect your weight loss. Are you eating a nutritional diet and not skipping any meals? Even if I’m not super hungry, I make myself eat (even small amounts) to keep healthy…..no skipping meals. Be sure what you eat is maintaining the necessary nutrition you need. Don’t waste it on eating empty calories, as you need to stay healthy to avoid any infections. Good Luck! I hope you stay strong as it can be difficult at times. I will be praying for you!

February 23
A MyMyelomaTeam Member

I wish weight loss was my problem, I had plenty of lower intestinal issues all through my treatment. I gained 40 lbs, I blame the steroids. Then the SCT changed my appetite entirely. I now have a crazy sweet tooth which I never had before. I recently noticed my blood sugar running a tad high so I went on a low carb diet. I’ve lost 23 lbs of the 40 lbs I’d gained since diagnosis.

February 23
A MyMyelomaTeam Member

I researched vitamins to take for multiple myeloma and it mentioned D3, C, Omega 3’s, Curcumin, Reservatrol, Glucosamine Chrondroitin MSM and Level II Collagen.
For back pain I’ve been using Icy Hot, Stop Pain Spray, CBD Oil and Black Seed Oil plus a new orange liquid called Manna liposomal curcumin and it seems to be helping lots with my back pain.
As far as eating exercise increases appetite along with b-12 drops but be careful what kind of B-12 you take. I take methylcobalamin 5,000 mcg raw source high absorption. I love a good salad and I’ve found the best salads are at Saladas a bit pricey but for all the variety and everything is fresh it’s worth it to me. Once a week my aunt and I take turns treating each other to lunch there. It helps with depression just to get out in the fresh air and sunshine.

February 23

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