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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have A Consistent Dull Headache And Neck Pain

A MyMyelomaTeam Member asked a question 💭
Wilmington, MA
January 14
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A MyMyelomaTeam Member

Awesome news MRD negative
Very happy for you… thank you for the feedback
I share the information with my wife ( caregiver) she’s unbelievably my rock!

We will beat MM down!

God bless you and the group for your support ❤️💪🙏

February 7
A MyMyelomaTeam Member

Don't be afraid to tell your doctor about symptoms that seem unusual. You might be having a reaction to one of the medications. I was initially given KRD ( Kyprolis,revlimid and dex) as induction and beem radiation for a fracture in my spine.
Make sure you drink a lot of pure filtered water. I did use Tylenol and Claritin when I had my chemo. After my SCT , I was given the Kyprolis and had a rare reaction that caused micro hemorrhagic internal bleeding. It took a few phone calls to my doctor before they believed something was wrong. Revlimid can also cause blood clots ( of course I got 3!).Read about side effects about the meds you are on too.
I wish you well. BYW I am MRD negative and blood work monthly is free of myeloma after almost 3 years post SCT. SO hang in there

February 7

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