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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Taking Forteo For Osteoporosis?

A MyMyelomaTeam Member asked a question 💭
Marlton, NJ

I recently discovered I have advanced osteoporosis through having a Dexa Scan. I saw an Endocrinologist the other day who blamed it on my 14 months of dexamethasone. She said Dex 'eats the bone' Because most osteo meds can be problematic with some dental work, she recommended daily injectable Forteo (which supposedly actually builds bone) and is not an issue with dental work. It's also available in a generic. Are any of you taking Forteo? I'd like to know about any side effects and cost if… read more

September 30, 2023 (edited)
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A MyMyelomaTeam Member

Look at their website
https://www.forteo.com

There’s a possibility of bone cancer.
Not recommended if any prior radiation treatments
Not recommended if serum hyper-calcium
Not recommended if a history of kidney stones
Various side effects details at site

Look into Strontium Citrate Supplement. This must be taken at least 2 hours after or before any food. I take it around 11pm - 680mg daily.

Get high levels Vit D3 (I get 10,000 IU daily), Calicium (I take 1500mg Calium Carbonate- 2 Tums early in the morning), plenty Vit C (2000mg in addition to in food), Magnesium (I get 400mg Magnesium Glycinate), Vit K2 (200mcg), a multi vitamin.

Read Dr Brandy’s Ebook - Beak Back Cancer Naturally. Details about Strontium Citrate. He took Dex for 6 years with Revlimid for his MM. He increased his bone density by 17% in two years while on his plant based diet.

See the Netflix - “The Game Changers” - mentions Strontium Citrate from a plant based diet

September 30, 2023
A MyMyelomaTeam Member

I was on Xgeva monthly the 1st year, then every 3 months the 2nd year and every 6 months this year. I needed dental extractions and had to stop it 3 months prior. There was also question of medicine induced osteonecrosis, but it was not, just age-related bone loss. I am off Xgeva presently, but it did improve my bone density! I also take D3 2000mg daily and calcium carbonate (antacid) 2000mg daily.

November 19, 2023
A MyMyelomaTeam Member

I took forteo and had no side effects. My osteoporosis was gone within a year. Wish I had it first instead of last!

September 30, 2023
A MyMyelomaTeam Member

I don’t take Forteo but I do get an Evenity shot for severe Osteperosis and have had 6 shot to date as I was diagnosed with osteoporosis previous to finishing my MM. Evenity is similar oncologist was super happy that I was already on a bone builder

September 30, 2023
A MyMyelomaTeam Member

Thanks everyone!

October 1, 2023

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