Connect with others who understand.

Sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can Anyone Share Their Experience With FasPro Treatment?

A MyMyelomaTeam Member asked a question 💭
San Diego, CA
August 6, 2023
•
Be the first to like/hug
A MyMyelomaTeam Member

If you are referring to Darzalex FASPRO, I am on it. I am currently using it as maintenance therapy after my SCT to keep me in remission. I started out with a weekly shot in the stomach that takes about 5 minutes. Thats the huge advantage of FASPRO is they can now administer as a subcutantious injection instead of a multi-hour infusion. After 8 weeks of weekly shots I moved into 8 sessions of bi-weekly shots. Then after that its just once a month. Again, this is the dosing cycle for maintenance. So far after 10 shots, this drug has been great. I have had zero injection site reactions and zero side effects. That is the huge advantage of this drug as it it not a chemotherapy drug with all the bad side effects (like the Velcade that gave me horrible neuropathy).
The International Myeloma Foundation has many YouTube video's on drugs, treatment, research, etc. Here is a link to a video about different drug classes for Myeloma.

https://www.youtube.com/watch?v=LnwPpL9SQCE

Good luck in your journey.

August 7, 2023
A MyMyelomaTeam Member

I have been taking Darzalex Faspro with Velcade, cyclophosphamide and my bad proteins have finally started to come down!!! Before they added Darzalex Faspro my numbers were going up or barely dipping every time I had labs so I can tell you this has worked for me with little to no side effects

July 31
A MyMyelomaTeam Member

I'll have to look up FasPro.

August 6, 2023 (edited)
A MyMyelomaTeam Member

Have u ever considered the alternatives like ivermectin and fenbendazol therapies. I read some studys about that, looked good for treating MM but i know people seem to prefer the chemo but that is toxic too or other alternatives?

July 31
A MyMyelomaTeam Member

Hi there, I am a chicken when it comes to using alternative treatments not being approved. When the treatment is working why looking for something else. Of course there are side effect and toxins you are getting injected or medication you are on. We do not know how the alternative works and they are toxic too. For me it is to risky. I always ask my doctors a specialist for myeloma first, then my kidney doctor and if it would be approved by them I still have my cardiologist to ask 🤔I know that technically I am not supposed to be here anymore and I will not risk it. This disease is something else and we have to be very careful to hold it together mentally and physically. If you let go your days are numbered. But no one know, I am just a chicken. God bless you all. 🌹😃

July 31 (edited)

Related content

View All

My Husband Starts Darzalex IV Treatment Tomorrow. Any Suggestions On What To Do Or Not Do For Him During IV Treatment (8hrs)?

A MyMyelomaTeam Member asked a question 💭
Chicago, IL

I Am Considering Having Car T-cell And Looking For More Information On It And Any Experience Anyone Has Had.

A MyMyelomaTeam Member asked a question 💭
Rochester, NY

I Was Diagnosed A Year Ago With MM. I Consider Montgomery, AL A Major City To Be Treated In But Wonder If I'm Getting The Best Care

A MyMyelomaTeam Member asked a question 💭
Wetumpka, AL
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in