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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Darzolax

A MyMyelomaTeam Member asked a question 💭
Tinley Park, IL

Has anyone declined to add darzolax to the therapy they are already On? I received my clonol seq results. 2 cells per million. Hope everyone is well. Have an active weekend.

July 21, 2023
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A MyMyelomaTeam Member

No I didn't decline Darzalex. I've been on it since 2017. It's one of the few drugs that has helped to control my myeloma. I take it with Pomalyst and am still MRD positive. Does your doctor want you to try Darzalex to get rid of the remaining myeloma cells? You are so close to being MRD negative.

July 21, 2023
A MyMyelomaTeam Member

My dentist calls for my platelet count before doing any dental procedures, even cleanings.

August 16, 2023
A MyMyelomaTeam Member

Donna Andrew, Good Morning, Yes my Dr. Does want to start Darzalex to knock out the remaining myloma. I am currently on Revlimid daily and Zometa once every 3 months. How ever I do consult with an MM specialist and he feels its not necessary at this time and I am in agreement. It's my belief that I should save that therapy of the myloma comes back in full force. I am still going to weigh all my options. My oncologist is going to present my case in a few weeks to the stem cells specialist who recommended the Darzalax once again and see what the response is. Thanks for your input. Have a great weekend

July 22, 2023
A MyMyelomaTeam Member

I take Darzalex now. I’m so grateful. I also get Zometa.

July 21, 2023
A MyMyelomaTeam Member

I have to take Gnc B-complex and B-12 drops 5,000 mgs for my appetite also royal bee jelly capsules for energy and circumim for pain inflammation and cancer and magnesium also for magnesium I eat peanut butter on Dave’s toasted bread topped with sliced bananas

January 4

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