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Do All Myeloma Patients Gave Neuropathy?

A MyMyelomaTeam Member asked a question 💭
LAVERNIA TX
July 16, 2023
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A MyMyelomaTeam Member

Had neuropathy till was put on Revlimed. Now gone, happy girl ..

July 16, 2023 (edited)
A MyMyelomaTeam Member

Not all myeloma patients experience neuropathy, but it is a common complication. Approximately 75 percent of people with myeloma develop peripheral neuropathy during treatment. This condition can cause symptoms such as numbness, tingling, or weakness in the feet, hands, or legs, making activities like walking, driving, or Show Full Answer

Not all myeloma patients experience neuropathy, but it is a common complication. Approximately 75 percent of people with myeloma develop peripheral neuropathy during treatment. This condition can cause symptoms such as numbness, tingling, or weakness in the feet, hands, or legs, making activities like walking, driving, or sleeping difficult.

Sources:
- Managing Peripheral Neuropathy in Myeloma | MyMyelomaTeam

July 10
A MyMyelomaTeam Member

I developed very painful PN flares in my hips and legs by the 5th series of VRD. My toes and front of my feet are numb. Calves tingle all the time. The numbness and tingling, I can deal with. Its the pain thats hard to ignore. Pretty sure its the Velcade causing it. The first bad flare, I was awake all night squirming. By the next morning I was thinking, oh hell...there had better be something that makes this better. Dr put me on Gabapentin 300 mg a day. It seems to help a little. At least its not at the level I cant sleep. So far, my hands are ok. I have been doing research on supplements for it, but everything that can counteract the way velcade causes PN also counteracts Velcade itself. Thats not a good thing. So for now, its Gabapentin.

July 17, 2023 (edited)
A MyMyelomaTeam Member

I got Neuropathy when I was doing treatment I got it in both my hands and feet. After treatment I got rid of it in my hands but not my feet. I haven’t done any treatment since February 2020 so I guess I am stuck with it unless they come up with something to get rid of it.

July 16, 2023
A MyMyelomaTeam Member

I have had neuropathy for the past few months. Praying I can find something other than prescription drugs for relief.

July 16, 2023

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