Thank you jrsavole, do appreciate your honesty and all the information provided. I am truly sorry you were treated with a lack of concern on how the side effects impacted your quality of life. Hope the adjustment to the Revlimid dose is working out
Larry 5

I'm doing that also .but mine includes high does of steroids first day with Dara I got a small rash on my back. Steroids suck I get them around 10 at injection time, and I don't sleep that night at all.

Appreciate the reply Julie and so very happy to know you are doing well !!!

I’ve been on maintenance of 10 mg. Revlimid for 21 days then off for 7 days for the last five years after SCT . I’ve been lucky with no severe or recurring side effects. I did get a blood clot this summer in my leg that required me to start taking a blood thinner daily. I get my labs done every 8 weeks and they have remained stable. So far I’m very happy with the maintenance as I continued to work and live a fairly productive life. I do fight some fatigue like everyone else.

Sorry, too many Larry’s, it was Larry2 I discussed curcumin with. Sorry..