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Anyone Done The ClonoSEQ

A MyMyelomaTeam Member asked a question 💭
Williamsport, PA
November 29, 2022
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A MyMyelomaTeam Member

Hi Robert - that’s a great study. Thanks for participating in it. Every time they do a test on your BMB and Labs, clonoSEQ should have a report per test. It would be nice to track the results per test. You might be able to ask clonoSEQ directly for your records.

As regards Donna’s question about why they need the original BMB is that’s what’s used to produce the genetic mapping of a person’s specific MM (prior to treatment). All future tests are looking for that specific genetic map and report how much is found that match.

December 2, 2022
A MyMyelomaTeam Member

I’m sure gonna ask

February 12, 2023
A MyMyelomaTeam Member

Donna, They haven’t told me yet. I signed up for the study 5 months ago. Last week was the second time they’ve gotten my Bone marrow sample. The study will go on for several years. And, yes I’m on maintenance with Kyprolis, Dexamethasone every other week, and Revlimid 21days out of every 28 days.

November 30, 2022
A MyMyelomaTeam Member

I’m in a clinical study using ClonoSEQ with Adaptive Technologies. My oncologist signed me up for that. I get a bone marrow biopsy every 4-5 months. The bone marrow biopsy and blood work is send to Adaptive Technologies. One of the goals of this clinical study is determine whether they can substitute determining MRD using blood samples instead of bone marrow biopsies. I’m MRD positive at around 86 cancerous cells per million, and have been at that level for 4 years.

November 29, 2022
A MyMyelomaTeam Member

Yes, it's very good thing. Even though I am still MRD positive my numbers of cells per million are going down at least. Thank the Lord😉

November 29, 2022

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