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M Spike Rising

A MyMyelomaTeam Member asked a question 💭
Lincoln, NE

When has your oncologist changed your treatment when your m spike rises. Mine started in July 2022 to .05 now in October 2022 it is .10
I contacted mt oncologist about this after I received the lab results but I haven’t received a response from him yet
My oncologist office has grown so large that I feel like I am just a number on a conveyor belt. Even though they are a hematology oncology office, I feel they give all their priority to breast and colon cancers. Don’t get me wrong they are… read more

October 8, 2022
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A MyMyelomaTeam Member

Hi Cat - if you do take any Darzalex product your Lab must do a special test to account for the false MSpike of 0.1 to 0.2. It’s easy but most do not by default.

Take a look at my Larry2 Story about the New NIH Study that may help keep you in remission. They did a 6 year Study and proved that C3 Curcumin at 8 grams at day had a real benefit of preventing a relapse.

All the Best

October 8, 2022
A MyMyelomaTeam Member

My spike has slowly risen to .08 and has fluctuates between .07 and .08. With that said my k\l ratio is still kind of ok though not normal. I have no other symptoms of anything yet. Its been 5 1/2 yrs since first treatment. First treatment took place when my spike was 2.2.

October 8, 2022
A MyMyelomaTeam Member

HI Cat!

I love Dr. Peterson at SE NE Cancer Center. I have never felt like a number with him or any of his staff. And he never hesitates to confer with someone more expert then he might be. He'll be retiring in a few years I imagine but I'm confident he will make sure I am still well cared for.

I am on monthly deratumumab infusions and am doing fabulous. I'd consider calling his office if I was you.

WE MUST DO LUNCH AGAIN! It's been way too long.

Thinking of you,
Meylonie

October 8, 2022
A MyMyelomaTeam Member

I agree with Peter. A myeloma specialist is a must with this disease. My doctor did tell me they don't go by just one lab. He said a rise in my m spike did not warrant a medication change. They look at the entire myeloma panel. My m spike went up to 0.4 after one of my Covid shots. It scared me. I know how you feel. But Emory rechecked it and it was fine. Sending hugs and prayers 💕

October 8, 2022
A MyMyelomaTeam Member

I would find the best MM specialist who then can drive your local oncologist to react. They have more clout and by moving to a specialist it will make them pay closer attention to you in a bigger office. Can’t give medical advice

October 8, 2022

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