Wendell1970, Hi, 1). You should ask your Specialist what Type of Myeloma you have. There are 10 different types of Myelomas. IgA and IgG either Kappa or Lambda. I am IgG
Lambda. 2). Ask if there are any Chromosomal Abnormalities 3). What treatment options are there and what is your specialist recommending and why. What side effects can you expect? What is the timeline of treatment and is a SCT in your future/ are you a SCT candidate? 4). What stage are you? 5). Ask him what things in your blood count you should watch for. 6) Ask him if you have any kidney involvement - what tests is he doing to monitor your kidneys. 7). Ask about your bone health. Do you have any lesions - do you have pain anywhere? 8) Are they going to do any other scans or tests? What bone strengthener will he be putting you on?
This is a lot of information. You will have more questions as you go along. Write down your questions and take it with you and write down your doctor’s answers too so when you get home you don’t ask yourself “ what did he say?” Lol! We all do it. This will be a good place to start absorbing the information. Do your research, Ask questions! Have a great day! Love, Marcia 🌼🌸🌻

Hi Wendell, first of all I hope your results come out well and you don't need much treatment! I would ask your doctor what side effects the medications have. My doctor gave me Kyprolis instead of Velcade because of my younger age and the neuropathy that Velcade can cause. I apprecate that because I finished the mo of Kyprolis with no neuropathy at all. Good luck and please keep us posted!

It has been so many years ago since I had to think of things but my prime question was: Am I or will I be a candidate for for a stem cell transplant and what is it going to have to be done to reach that point? What drugs and side effects am I to expect. Praying for you!

what type of myeloma you have and where does that fall in the categories:
low risk
average risk
high risk

@A MyMyelomaTeam Member ask your doctor to send samples of your biopsy to a secondary pathologist for confirmation. I did not know that was an option until a doctor friend told me. It helped me with peace of mind knowing the diagnosis was confirmed.

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