Quick Links
Resources
About MyMyelomaTeam
Powered By
What Determines Whether A Person Has A Stem Cell Transplant? From All The Info On This Site, Is Age Or How Sick You Are Determine This?
You are right!. SCT is a big thing. . Protocol treatment of choice . "They say, studies show". SCT is not a wonder treatment. It is a grueling intense lengthy procedure, only to be followed by new… read more
Anyone Get Their Covid Antibodies Before Getting The Next Shot??
My drs are of different opinion about it. Im trying to figure it out
Esther, did your results show you had immunity to Covid?
Bone Marrow Biopsy Mid Treatment
I’ve been treated for 7 months for mm wish faspro rev dex. and my Md is now suggesting a bone marrow biopsy , perhaps new drugs.
I am nervous about this, as I am 80 and have cardiac and anemia, neutropenia issues. Anyone know a different test less severe way to measure my current condition ?
Thank you! 😊
A bone marrow biopsy during treatment for multiple myeloma can help assess how well the treatment is working. The procedure involves numbing the back of the pelvic bone, inserting a needle to remove a… read more
What Is The Most Effective Pain Relief Medication
Severe leg pain from multiple myeloma
What Is The Most Effective Pain Relief Medication
Severe leg pain from multiple myeloma
The effectiveness of pain relief medication for myeloma varies among individuals. Here are some options mentioned in my knowledge base:
- Gabapentin (Neurontin): Some find it effective, while others… read more
Has Anyone Found Out They Have Osteonecrosis (dying Bone) Anyplace Besides Their Jaw? Was There Anything Specific You Do To Manage It?
I have a torn meniscus in my right knee and the Dr's are promising me I'll need a knee replacement someday. I am in remission for MM, but I also have osteoporosis and osteoarthritis. At a Dr's appt today, partly to determine how stable my bones would be to do the knee replacement, an x-ray revealed that I have some osteonecrosis. (I am waiting a while before doing the replacement, but we are monitoring how my knee is doing.) So - if you've been diagnosed with osteonecrosis (someplace besides… read more
Started Maintenance Therapy July 1st, Then While Camping, I Woke With An Itchy Rash On My Back, It Has Since Spread To My Whole Body..
So itchy! Blister like, sores, hives and red bumps, and itchy! Taking Benadryl and have cream. What is it from?
Shannon
Please let us know how you are doing since the rash outbreak
Rashes could mean allergic reaction to drug and revlamide causes it but it could mean shingles and course revlamide causes… read more
I Am In Remission. What Is The First Medicine I Might Get If And When The Condition Becomes Active Again?
If your multiple myeloma becomes active again after being in remission, your doctor may recommend using one of your original therapies or trying a new approach. Possible treatment options include:
-… read more
If You Were Asked To Enter A Clinical Trial Would You Do It?
My concern is that once you enter you’re stuck with it for the duration. Meaning you may be one of the few who don’t make it to the end of the overall survival line.
I want to be able to opt out 2 years later for that new drug bookabookabab and then 3 years later for dinkadeeabab.
Because I want to keep going and expire from something else.
Like I said......yes, I agree too Mark! I'm noting those chemicals for future reference 😉
Sedation Options For Bone Marrow Biopsy
i am very anxious about my upcoming biopsy -my 4th. Anyone requested twilight sedation for this? Fentanyl wasnt enough for me
Versed is a very powerful sedative, aka 'milk of amnesia'. They use it before surgery to help people relax. I believe it's what Michael Jackson had. I personally didn't want to take it anymore for a… read more
Your Privacy Choices