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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Ninlaro" in Q&A. To see all results and access other features, sign up for free.

Ninlaro What Are Common Side Effects

A MyMyelomaTeam Member asked a question 💭
Safety Harbor, FL
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A MyMyelomaTeam Member

Thank you

Darzalex

A MyMyelomaTeam Member asked a question 💭
Tamoa, Fl

I am beginning treatment with Darzalex what have people experienced with this treatment? I had a Stem cell implant 18 yrs. ago and was in remission until now. Tried pomalyst and ninlaro with no sucess.
Dr.Stan

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A MyMyelomaTeam Member

Yes i am on darz and ninlaro..my numbers got better but no to a stable number i told my dr
1 more blood test then something new I believe Ninlaro just isnt strong enough to kick it out..Pomalyst… read more

Ninlaro

A MyMyelomaTeam Member asked a question 💭
Boca Raton, FL

I was taken off ninlaro 2 yrs ago. This week I had my first M spike since transplant (2015). Is it likely that I will be put back on ninlaro?

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A MyMyelomaTeam Member

That’s a good question for your doctor. You have to get control of your myeloma so there’s going to be an answer for sure. Best of wishes you get in remission again soon!

Is Anyone Taking Ninlaro? If So, Do You Know How Long You Have To Wait AFTER TAKING THE PILL To Eat? Nowhere Does It Address That!

A MyMyelomaTeam Member asked a question 💭
Mason, TX
A MyMyelomaTeam Member

Makes sense! Thank you!

IgG And Kappa Light Chain Rising M Spike Stable

A MyMyelomaTeam Member asked a question 💭
Long Island, NY

Is it common for a doctor to see that the kappa light chain is out of normal range and the IgG is raising and the M spike is stable? She’s keeping me on the same medication 4 mg of Ninlaro every Wednesday for three weeks and 21 days on 25 mg of Revlimid 4 mg of decamethazone on the Wednesdays that I take the in Ninlaeo?

I’m confused and perplexed.

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A MyMyelomaTeam Member

An increase in IgG and kappa light chains with a stable M spike can indicate changes in the disease activity of multiple myeloma. Here are some key points to consider:

- IgG and Kappa Light Chains… read more

Greetings From Alaska I’m Looking For Information On Velcade In Pill Form? I Had A Physicians Tell Me That There Was A Velcade And

A MyMyelomaTeam Member asked a question 💭
Anchorage, AK
A MyMyelomaTeam Member

I hope they do have a pill form for Velcade.....

Hi, Anyone Else Dealing With Extra-medullary Myeloma (EMM)?

A MyMyelomaTeam Member asked a question 💭
Jersey Shore, PA

My version of multiple myeloma is rare apparently. I have extra-medullary myeloma, and it has manifested itself in two liver lesions, and now a soft-tissue plasmacytoma on my right gluteus medius muscle. The liver lesions resolved under treatment of Daratumamab-Pomalidomide-Dexamethasone, over 18 months. In April and July 2024, MRI results showed a growing plasmacytoma on my muscle, which has been biopsied and is definitely MM, with the same markers as before, CD138 and CD56. Biopsy results… read more

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A MyMyelomaTeam Member

Keith
It sounds like you are knowledgeable about the treatments. Our bodies are like cars, they replace parts that don’t works or if that doesn’t work, replace another one, then fix the dents.… read more

How Is Your Doctor Treating Revlimid Rash(bad)

A MyMyelomaTeam Member asked a question 💭
Santa Barbara, CA

Is there a backup treatment if revlimid rash (which is bad) can’t be controlled. Any ideas how to best dean with revlimid rash?

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A MyMyelomaTeam Member

Rashes from Revlimid (lenalidomide) can be a common side effect. Here are some ways to manage them:

- Medications: Over-the-counter or prescription antibiotics, corticosteroids (like dexamethasone)… read more

What Are Some Successful Fatigue Preventives While Taking Ninlaro And Dexamethazone?

A MyMyelomaTeam Member asked a question 💭
Snyder, TX
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A MyMyelomaTeam Member

Hey Donnie, exercise is supposed to help treatment related fatigue. I would ask about the lowest dose of dexamethasone you can get away with. Maybe ask about a mild sleep aide when you have to take… read more

My Mom Had A Severe Allergic Reaction To Revlimid. Her Rash Returned A Month Later. Is That Common?

A MyMyelomaTeam Member asked a question 💭
beaufortomartin@gmail.com
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A MyMyelomaTeam Member

Yes, it is common for rashes to occur as a side effect of Revlimid (lenalidomide). According to your knowledge base, rashes are a frequent side effect of immunomodulatory drugs like Revlimid. Many… read more