Connect with others who understand.

Sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do We Know If We Are Taking Too Much Iron? Too Much Is Just As Bad As Too Little. I See No Iron Levels On Any Of My Tests. Only CBC.

A MyMyelomaTeam Member asked a question 💭
Lake Charles, LA

Red Blood cells are always very low and I know I’m anemic too!
Dr. Hans Lee told me to get off the iron due to constipation but I felt my body go downhill very quickly. Geritol with B vitamins and some iron is in my multivitamin 18 mg in both I take one one day and one another day not both.

7 days ago
View reactions
A MyMyelomaTeam Member

They can check your blood. Here are some tests to check your levels. Ask your doctor about them.
Serum iron test, which measures the amount of iron in the blood
Transferrin test, which measures transferrin, a protein that moves iron throughout the body
Total iron-binding capacity (TIBC), which measures how well iron attaches to transferrin and other proteins in the blood
Ferritin blood test, which measures how much iron is stored in the body

6 days ago
A MyMyelomaTeam Member

Get a Ferritin Blood Test. It’s the amount of circulating reserve iron in your blood.

There are Plant Based Iron that are safer to take but if your MM is very active, you may not be producing enough healthy blood cells to keep your iron levels normal

7 days ago
A MyMyelomaTeam Member

My oncologist checks my Iron frequently. It’s always just below normal. However, she doesn’t want me take any iron supplements.

7 days ago
A MyMyelomaTeam Member

Ask your oncologist why you don’t have that information. Be sure to always get a printout of your labs. Ask if they can recommend a book or booklet that explains the lab results.
Use a high-lighter to emphasize the information.
Get booklets that explain your MM. Get the name of the TYPE of MM that you have. Learn all you can about your disease.
Ask questions at your oncologist meetings. Write down the answers.
This disease is overwhelming. Take the information in the amount that you can handle. You will have good days and rough days. Just remember to take care of yourself FIRST and if others don’t understand or act like you could do your regular activities…. Hand them the information that you wrote down at your Dr.’s Appointment! Have them read it out loud. Then make sure you get some rest.
Pamper yourself when you can. Let the “small dramas” go because they are not important enough to take part of. There’s more important things in life than the small things. 98% of life is small things. But most importantly of all-make memories. Do what you have always wanted to do while you can. Take photos (real pictures) and date them, notate where and with whom you are with. Put them in an album for the start or continuing of heritage. Make copies for each of your children and special ones for any grandchildren.
We are all on this journey together, and our paths are all different. We support each other and try our best to be informative as much as we can. None of us are experts at this, it is our first experience with it. But we all are learning.
Good luck and God Bless,
“Teece”

3 days ago
A MyMyelomaTeam Member

@A MyMyelomaTeam Member
I take vitamin B12 everyday as it helps with red blood cell production: Vitamin B12 helps create healthy red blood cells.

5 days ago

Related content

View All

Seeking Info About Kappa Free Light Chain Levels And Kappa/lambda Ratio

A MyMyelomaTeam Member asked a question 💭
Heart of Texas

Is There Anything We Can Do As An MM Sufferer To Significantly Improve Our Level Of Energy And Reduce Our Fatigue Level?

A MyMyelomaTeam Member asked a question 💭
Brisbane, AU

Can We Eat Or Drink To Boost Our Immune System?

A MyMyelomaTeam Member asked a question 💭
Lake Charles, LA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in