Thank You Pbaldini. I'm with you on chiropractic care (if I can call it that). I saw one after a car accident and all they did was hurt me with their bone crushing techniques. The only thing I received that felt good was the hot packs.
I appreciate your input. The bone marrow Biopsy was agonizing as it's done by numbing only. A Damn drill and 🔨 hammer was barbaric. I just had surgery on both my eyes (numbing only). I asked for some kind of sedation and anesthesiologist told me I was getting numbed if that wasn't enough I could get dressed and go home. Since the Opioid epidemic they've reverted back to barbaric anesthesia. I've developed a form of P.T.S.D. from not being treated properly.

@A MyMyelomaTeam Member I ask SO TIRED of hearing these “experts” say SMM is asymptomatic!! Unless they have lived it they DO NOT KNOW. I have been seeing an acupuncturist, I have found him more helpful than all of my traditional medical providers. I have been experiencing back, rib and pelvic pain - but I guess that’s not real either - according to the “experts.”

One thing that is obvious from hearing from others diagnosed with Smoldering Multiple Myeloma - it IS NOT ASYMPTOMATIC!! It would be nice if the “experts” listened to the people who actually know for once!

Something new I have started using is DMSO, you can find it in roll on applicators. I recommend getting one of the scented varieties because it can have a strange odor.

I’m sorry that your treatment providers haven’t been able to help you or get answers for you. I hope you do find some relief soon.

Mentioned Users

A MyMyelo...

Kenneth,
Absolutely avoid Chiropractors. Have your spine doctor refer you to a pain management specialist or Palliative Care. I have SMM and my back is killing me right now. I have severe osteoporosis, osteoarthritis and a herniated disc at L4-5. My pelvis is deteriorating and causing pain and walking difficulty. Doctors think we don’t have symptoms, but we do. They just can’t see it.
Paula🌹

@A MyMyelomaTeam Member,
I have groin and pelvic pain. Hip pain too. It’s hard to sleep at night. I went to an Orthopedic Oncologist who said there was nothing he could do. I think if my pelvis breaks, then they will do surgery, but for now he just said he would refer me to a Pain Management Specialist, which he forgot to do.
Paula🌹

Mentioned Users

A MyMyelo...

Hi everyone. I also have been experiencing bad groin/pelvic pain. Anyone doing anything to help. Although they said nothing bad was found)& i’m grateful),MRI says the bones are: diffuse heterogenous marrow