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Do You Make Your MM Decisions Based On Quality Or Quantity Of Life?

A MyMyelomaTeam Member asked a question 💭
San Jose, CA
January 3
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A MyMyelomaTeam Member

Quality creates Quantity

January 3
A MyMyelomaTeam Member

At this stage of my journey it’s definitely quantity of life for me. I’m in a good place right now with this disease But not to say that won’t change in the future. If the disease progresses unfavorably it will be quality of life for sure. I think my positive attitude, passion for life and love plus faith are a driving factor right now.

January 6
A MyMyelomaTeam Member

Hi Janet, faith is very important in our battle.

January 5
A MyMyelomaTeam Member

@A MyMyelomaTeam Member
I'm actually discussing this with my oncologist as the balance I need. Not one over the other.

I'd like to live longer but not at the cost of quality of life.

So until I have no options for treatment left, I'd like to fight back with what's available but within reason.

Example: I'm on Sarclisa once a week, Dex steroid and Pomalyst 2mg - 21 days on 7 days off, but the Pomalyst is difficult for my body to endure so I take days off in-between. It's what I have to do to find a balance.

Great question Rick.
What's your opinion regarding?

January 3
A MyMyelomaTeam Member

Very good question. Right now my treatments give me minimal side effects. I have been on the same treatments for a long time. I only have to go in once a month. I try not to think about going through a relapse and having to start a new treatment. I hope and pray that doctors and big pharmacy take in our lifestyles as they develop these new drugs and treatments.

January 4

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