Is Complete Remission Really Important For All Of Us?
I am Stage 3 and will probably be on medication my entire life. Seems it is more important for standard MM patients that can actually be off medications in remission.
Light chain diagnosis usually is a worse outcome than other types of MM, lambda 3x worse than kappa, but there is also the possibility of not having any symptoms. Hopefully that is us for many years to come. Merry Christmas Rhonda.
I was diagnosed in November 2021. Had no symptoms but some blood work for my nephrologist indicated the need for a bone marrow biopsy. It showed Lt Chain MM.
Started with 2500 Kappa Lt Chain. Got right on velcade/revlimid. Now my numbers are in the range for regular population. Have been on Pomalyst/Darzalex Faspro at the VA since October 2022. No real side effects for either regimen. I'm 78 and at this time I believe this is my future and am good with that. As a Christian I know my time is in God's hands. Merry Christmas!
I am, was also stage 3b at diagnosis. With high-risk genetics. I have not reached mrd negativity after 8 years of continuous treatment. I asked my specialist why some people reached a stringent response after only 4 months of treatment, and he told me that they don't have my myeloma. So, I will probably be on some type of treatment forever. I'm very grateful that I have been on the same treatments since my Transplant December 20th, 2017. I hope we both continue to do well and that our myeloma stays well controlled. Merry Christmas 🤶 🎄
We are in a select group, no symptoms or side effects. A gift from God.
Hi Ronda, I had 2,300 Lambda Light chain at diagnosis 9 months ago in a few months of treatment it was in the normal, I was 67 at the time. Same as you no symptoms or side effects from the treatments. Hope it stays this way.
Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.
What Is Complete Remission?
Does Anyone Have Experience With Loss Of Taste Resulting From Treatment?