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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Complete Remission Really Important For All Of Us?

A MyMyelomaTeam Member asked a question 💭
San Jose, CA

I am Stage 3 and will probably be on medication my entire life. Seems it is more important for standard MM patients that can actually be off medications in remission.

December 24, 2024
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A MyMyelomaTeam Member

Light chain diagnosis usually is a worse outcome than other types of MM, lambda 3x worse than kappa, but there is also the possibility of not having any symptoms. Hopefully that is us for many years to come. Merry Christmas Rhonda.

December 25, 2024
A MyMyelomaTeam Member

I was diagnosed in November 2021. Had no symptoms but some blood work for my nephrologist indicated the need for a bone marrow biopsy. It showed Lt Chain MM.
Started with 2500 Kappa Lt Chain. Got right on velcade/revlimid. Now my numbers are in the range for regular population. Have been on Pomalyst/Darzalex Faspro at the VA since October 2022. No real side effects for either regimen. I'm 78 and at this time I believe this is my future and am good with that. As a Christian I know my time is in God's hands. Merry Christmas!

December 24, 2024
A MyMyelomaTeam Member

I am, was also stage 3b at diagnosis. With high-risk genetics. I have not reached mrd negativity after 8 years of continuous treatment. I asked my specialist why some people reached a stringent response after only 4 months of treatment, and he told me that they don't have my myeloma. So, I will probably be on some type of treatment forever. I'm very grateful that I have been on the same treatments since my Transplant December 20th, 2017. I hope we both continue to do well and that our myeloma stays well controlled. Merry Christmas 🤶 🎄

December 24, 2024
A MyMyelomaTeam Member

We are in a select group, no symptoms or side effects. A gift from God.

December 25, 2024
A MyMyelomaTeam Member

Hi Ronda, I had 2,300 Lambda Light chain at diagnosis 9 months ago in a few months of treatment it was in the normal, I was 67 at the time. Same as you no symptoms or side effects from the treatments. Hope it stays this way.

December 24, 2024 (edited)

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