Hi Just Want To If Anyone Who Progressed From Smoldering To Full Blown MM Whether It Was Sudden Or Gradual?
Filomena,
Most people don’t get diagnosed until they have full blown MM. Those that get diagnosed with MGUS can have it for years and never progress. Those first diagnosed with Smoldering have no idea how long they had MGUS, then Smoldering, so when they progress, they don’t really know how long it took from onset, I’ve seen some posts where they are smoldering then 2 months later have MM. I was diagnosed with MGUS in 2020 but probably had it since 2011. Diagnosed with Smoldering in 2023. Next month I get blood work to find if I have progressed farther. The last visit showed some of my numbers got better. I’m trying to eat a vegetarian diet with some salmon. Check out Dr Brandy’s book for a list of supplements.
Paula🌹
I was diagnosed with MGUS in May then smoldering in August and my anemia is worsening my so the Dr will be checking on me and my lab work every month.
I was diagnosed in 2017. Still smoldering—no treatment. Blood test every 6 months. Slightly up each test😞. We are all different.
Won't know results until January. I was diagnosed in September
The progression from smoldering multiple myeloma (SMM) to full-blown multiple myeloma can vary. Here are some key points:
- Risk of Progression: The risk is highest right after diagnosis and decreases over time.
- First 5 years: About 10% per year.
- 5 to 10 years: About 3% per year.
- 10+ years: About 1% per year.
Does Anyone Have Smoldering Myeloma?are You Doing Treatment?
Quantitative Kappa Free Light Chains At 30.55 What Does This Mean? Should I Be Worried. When I Look It Up It Says So Many Different Things.
Does Anybody Else Have Multiple Myeloma That Is Smoldering. I Started Out With MGUS For 8 Years And Now Multiple Myeloma