Find another caregiver through this forum or Healthtree. Having someone who understands is important. The other tips above are all good.
October 21
Here are some caregiving tips for someone with multiple myeloma (MM) based on my knowledge base:
1. Prepare for Appointments
- Write down questions before appointments.
- Use a smartphone or tablet to record discussions (with permission).
- Take notes in a smartphone app for later reference.
- Bring a friend, Show Full Answer
Here are some caregiving tips for someone with multiple myeloma (MM) based on my knowledge base:
1. Prepare for Appointments:
- Write down questions before appointments.
- Use a smartphone or tablet to record discussions (with permission).
- Take notes in a smartphone app for later reference.
- Bring a friend, family member, or caregiver to appointments to take notes and ask questions.
2. Plan Transportation:
- Arrange transportation to medical appointments well in advance.
- Utilize resources recommended by organizations like the Leukemia & Lymphoma Society.
3. Seek Support:
- Connect with others who understand life with myeloma on platforms like MyMyelomaTeam.
- Share experiences and advice with other caregivers and patients.
4. Manage Side Effects:
- Get tips from others on managing side effects and sticking with therapy.
- Consider exercise and a healthy diet to help manage side effects.
5. Utilize Resources:
- Ask about financial, social, and emotional support resources available at cancer centers.
- Explore patient navigation centers and support from nonprofits like CancerCare.
6. Self-Care:
- Encourage self-care practices for both the patient and caregiver.
- Consider music interventions and other activities to improve psychological and physical outcomes.
These tips can help caregivers provide better support and care for someone with multiple myeloma.
October 21