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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Is The Most Unexpected Difficulty In Your MM Journey?

A MyMyelomaTeam Member asked a question 💭
Singapore

I was shocked and upset but l prayed to GOD and GOD give me the spirit of hope faith and strength.lt is not a death sentence and may be as bad as it seems.So MM Worrior fight till the end.Good night 🙂

3 days ago
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A MyMyelomaTeam Member

I had to come to terms with the new version of myself. I used to be an energizer bunny, always on the go. I still enjoy my hobbies, but at a slower pace than before. I don’t entertain as often as I used to, so I enjoy people to the max when we get together. Life has changed for sure.

2 days ago
A MyMyelomaTeam Member

My unexpected difficulty was not being able to drive a car for six months due to the upper body rib pain. I still have upper body pain but not as bad. 👨‍✈️

3 days ago
A MyMyelomaTeam Member

Hi Ann. I too have 2 titanium rods and 10 screws holding my back together. I’d say we didn’t have much choice. That being said where do we go from here? First get some clothes that fit..😀.. my goal is to exercise the best I can, eat a proper diet so that I have muscle and not carry around unnecessary weight in the form of fat. Yep the back pain is still there. But I find exercise certainly helps with that.

3 days ago
A MyMyelomaTeam Member

Right after I took the Chemo that kills everything, I had diverticulitis and my bowel twisted. This became complicated and I had several infections which lead to 3 surgeries while I was trying to get the chemo started. God gave me the best Oncologist who knew what to use for MM and PCL and best Surgeon too. The meds first line are still working at almost 7 years. Be thank for each day and be positive.

3 days ago
A MyMyelomaTeam Member

That MM or treatment accelerated things; age, age related morbidities, or other functions that were weakened by Chemo therapy, .....while it was also fighting MM.

3 days ago

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