Thank you! No, I’ll look for it.

Hi Sally,
There are a lot of people with Smoldering MM who think it should be called cancer. I was told by one doctor that cancer is defined as uncontrolled growth. I guess since we have a low level, we are still defined as pre-cancerous. With my symptoms, it feels like cancer.
Paula🌹

@A MyMyelomaTeam Member,
I forgot to mention the itching! Lol. I do have a little neuropathy in my left heel. Lynn, your itching may be caused by your kidney function. Drink lots of water. I take 2 heaping teaspoons of Nutritional Yeast to protect against neuropathy. I also take (MRM Bone Maximizer III) which is 1200 mg calcium , magnesium and I take extra D3 & K2 to tell the calcium to go to my bones. That helps minimize bone, leg and muscle pain. A CAT scan shows my pelvis is being affected, so the left leg collapses. I stopped driving for 6 months, until I started my supplements.
Paula🌹

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A MyMyelo...

Hi Paula,
Thank you so much for responding. Why do so many sources say that SM is asymptomatic??!!! My first symptom was uncontrollable itchy skin. OTC creams and lotions did not help. Dermatologists couldn’t find anything. Allergists couldn’t find anything. Someone finally sent me to an oncologist who diagnosed my MGUS. Since then it has been the exhaustion, constant leg pain, and peripheral neuropathy in my legs and feet. My right doesn’t always keep up with my left leg so I had to stop driving. Do you think my leg issue is from my pelvis too????

Your response was so helpful. Thank you 💜

@A MyMyelomaTeam Member,
Hi Lynn,
I didn’t know it but my first sign was low white blood cells and neutrophils in 2011, but my doctor said that was normal for me. In 2020, I went to a Rheumatologist for pain in my hip. She did blood tests. I had severe Osteoporosis and Osteoarthritis. She saw how low my blood tests were and sent me to an Oncologist. 2 of my ribs have broken without trauma. The 6 or 8 others were from trauma and probably osteoporosis. I have back, hip, neck, ankle and feet pain. I have no stamina. I get tired quickly. My pelvis is deteriorating so much that my right leg collapses unexpectedly. Many with SMM or MM do not have osteoporosis. I was taking a high corticosteroid in 2018-2019 and it caused osteoporosis, a heart condition, eye problems, etc. I am still independent, but I don’t know for how long. I was able to get through Costco this morning by myself, ,which I could not do in the past. I’m actually doing well compared to most people. Remember, we are all different. What are your symptoms?
Paula🌹

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A MyMyelo...