Excellent response from AI

If you are in partial remission you should definitely be on some kind of chemo to get you into total remission. I would find another oncologist preferably a specialist in multiple myeloma.

Thank you all for your advice. I see my haematologist on the 25th of this month and I am going to ask him about maintenance treatment. Thank you all for your caring I really appreciate it. God bless each one of you.
Janet742

You could ask your doc why not on maintenance or find a MM specialist oncologist that works with MM patients.

Hello Janet,

From what I’ve read, clinical studies have shown time again that being on maintenance prolongs remission of the disease. [And for those who have under gone SCT, studies have found that lenalidomide maintenance therapy prolonged remission for about 57 months compared to 30 months without maintenance.]

Other studies have also found that a higher dose of lenalidomide maintenance therapy can extend remission over lower doses.

If you’re not seeing an oncologist specializing in MM, you might consider seeking one out over a general cancer based hematologist.

To me, the fact you are in partial remission suggests you might benefit from a 5-10mg low dose of Revlimid and Dex for maintenance.

After my 8 month induction therapy, I achieved partial remission as well. Then with a lower dose in maintenance, my numbers continued to come down over the next 5 months, until I hit complete remission. Since then, we’ve deescalated the maintenance dose even further to reduce side effects.

Instead of stopping maintenance, my next step is to reduce the dose meds again and change the scheduling from perhaps two weeks on two weeks off, versus three weeks on and one week off.

Everyone’s MM is different. But the fact you didn’t hit remission suggests you could benefit from a low dose of Revlimid in maintenance to keep your disease in check.

Ask your hematologist why you aren’t in maintenance therapy.

Jamie