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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do Any Of You, Who Have Neuropathy In You Feet, Experience Swelling Of Your Feet?

A MyMyelomaTeam Member asked a question 💭
Bonney Lake, WA
September 21
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A MyMyelomaTeam Member

Kathryn and Robert Monteiro thanks for the hugs. Ron I was the same physically before MM and now I need to use a walker in the house and outside and also a cane when I go to appointments but at least I have am not in a wheelchair yet and I figure if I wake up in the morning it’s a good day because I have been given really a lot of extra years of life,it’s been 22years.

September 22 (edited)
A MyMyelomaTeam Member

I exercise every day. However, I do have poor circulation in my feet. Massaging it seems to help a bit. Elevating my feet, and sleeping with my feet elevated also helps.

September 21
A MyMyelomaTeam Member

It’s likely to be edema. Fluid retention due to poor circulation which is a side effect from treatment or just getting old.

Typically diet and exercise are the treatment but you might want to get it checked

September 21
A MyMyelomaTeam Member

Tom, In addition to B12 I would also suggest R-alpha lipoic acid. I take b12 2000mg and 900mg R-alpha lipoic acid daily. There are also various drugs out there to help with pain but in my case I can't take most of them do to kidney disease caused by MM. The ones I could take such as gabapentin didn't make a difference at all. It just added fatigue. I also tried many many different creams that I found no relief from. Good luck Tom

September 24
A MyMyelomaTeam Member

A while back, I had swelling in my left foot and ankle. My NP suggested stopping my use of amlodipine, which I had been taking a couple of years for high blood pressure. Further research on my part and I read that my feet should be elevated when sleeping. Our house is nearly 100 years old. The floor in my office, where I now sleep slants slightly. I changed sleeping positions to where my feet are slightly uphill from the rest of me. I noticed fast results, with the swelling disappearing in a couple of days. I still have a mild, very occasional neuropathy in the same foot/ankle and have begun taking B 12 once a day.

September 24

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