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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Here Are My BMB Results, For Those Of U That Can Decipher The Medical Language, Please Feel Free To Do So. Health Is The Tru Wealth!

A MyMyelomaTeam Member asked a question 💭
Tallahassee, FL

Diagnosis Review
1. 20% Total Marrow Precancerous Cells
2. eGFR 88, kidneys normal so far
3. Bone Scan NEGATIVE, awaiting PET SCAN, denied by insurance, have requested ONC to intitiate a peer to peer discussion to get PET scan approved, but so far, ONC has taken position that ‘we have enough to diagnos SMM’ and will ‘watch it’. To me, that means watch it progress bec most SMM cases evolve into Tru MM.
4. CRAB OR Elevated Calcium, Renal Failure, Anemia and Bone-Lyric lesions are normal at this… read more

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August 23
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A MyMyelomaTeam Member

MM is like playing pen the tail on the donkey.

August 26
A MyMyelomaTeam Member

Paula; when I saw your explanation of the K and L as part of the immune system and how they have no place to attach,they don't work properly. Immune system doesn't work right.
That resonated with me; better than an illustration or graph. That's why a cold, flu, shot, or something else, effects the light chains. So a rise, could mean MM or simply something else that is temporary? It's the ratio that tells the story........am I reading it right?

August 26
A MyMyelomaTeam Member

Dan,
Have you looked at the resources page at the top? That also has information. You could also go to
https:www.myeloma.org/resource-library/patient-handbook

https://www.myeloma.org/resource-library/patient-handbook
August 25
A MyMyelomaTeam Member

Really like a punch in the gut.
I'm slow.....quacking? In a row? Lol

August 23
A MyMyelomaTeam Member

Really, 3 weeks ago I’d never heard of MM, this has been baptism by fire! Quack quack!

August 23

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Update: My Diagnosis Is Smoldering Myeloma Based On The ONC Update Today: 1) BMB 20% 2) Bone Scan NEGATIVE 3) EGFR Normal, 88. Monitoring.

A MyMyelomaTeam Member asked a question 💭
Tallahassee, FL

Bmt

A MyMyelomaTeam Member asked a question 💭
Williamsport, PA

How Do We Find A MM Coach And Or A MM Specialists, Are Those The Same Person?

A MyMyelomaTeam Member asked a question 💭
Tallahassee, FL
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